Hello, I was diagnosed with POTS in my early 20's and it was always an annoyance but nothing major ( I don't fully pass out). Last year I came down with a virus, not covid-19 as far as I know, and my symptoms seem to have tremendously worsened since then, plus several new symptoms have appeared. I finally got a new PCP last year. I hadn't had one in years due to severe medical gaslighting in the military healthcare system so I was very reluctant to visit a doctor. She was very dismissive about my POTS diagnosis on the first visit, but believed me when I returned with a very erratic HR and she saw for herself. She also diagnosed IST at the appt. and referred me for a cardiology workup. The cardiologist agrees I do indeed have POTS, IST and some left ventricle disfunction. I'd like to know if the new symptoms I'm having are common with POTS and mostly I'd like validation that it's not all in my head! Any info is much appreciated. I also have chronic pain from joint hypermobility and GI issues that coincide with the initial POTS diagnosis 20 yrs ago.
1. episodes of extreme fatigue, worsening of general energy levels.
2. Mild nausea in the mornings
3. Severe loss of appetite to the point of almost food aversion with 15lb wt loss
4. Vertigo (not lightheadedness like I might pass out)
5. Air hunger (not new but much worse in the past few months)
6. Muscle cramps (primarily calfs and hamstrings)
7. Burning neuropathy type pain in my feet