Hi all,
I'm hoping someone can help shed some light on my situation and whether or not I'd be on the right path to venture down a possible hEDS/ Dysautonomia diagnosis.
Since I was about 10 years old (now 22), I experience pre syncope like auras lasting minutes to hours where my symptoms range from light headedness and dizziness to tachycardia, chest pain, palpatations, loss of vision (everything goes black), hearing impairment (everything sounds like I'm being spoken to through a stethoscope) and lose of motor control. Last year in 2023, I had my first full vasovagal syncope which resulted in a ED admission (good thing I work in a hospital ).
The above symptoms are my most pressing issues I would say and they have been explored in the past via halter monitors, anaemia testing, menstrual cycle investigations and referrals to doctors to investigate brain tumours and epilepsy with no luck in a diagnosis.
These symptoms are very sporadic and I can go months without nothing to feeling it during a run or even while driving.
Additional symptoms I present with that have led me down this path of Dysautonomia etc. include brain fog, sensitivity to temperatures, fatigue, change in appetite, no sexual arousal, exercise intolerance (unable to build any muscle strength and can experience lose of motor control etc. while exercising), GI issues (until recently unable to open bowels daily), transclucent / very pale skin, UTI and kidney infections without any symptoms, increased muscle tightness in back, quads and hips and a hyper mobility beighton score of 5/9.
For years people have thought these symptoms are all in my head or stress related but I know my body and I know it's not any of that. So please if anyone has any insight, thanks in advance.
