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Wayward_Phoenix

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  1. @Sarah Tee Newly diagnosed with POTS although I realize I’ve been having subtle symptoms for years . I’m curious why all of the sudden it got so much worse . I was told to drink more water and add more salt to my diet Sodium and salt tends to elevate my heart rate and promote panic and anxiety so feel conflicted with that advice … I was referred to a cardiologist but don’t neurologists deal with ANS dysfunction as well? Do you know ?
  2. @Pistol thanks for sharing , very informative clears some things up
  3. @JbjThanks for sharing . My symptoms seem to have been slowly creeping up on me for years now they’ve reached some type of peak, it could be from Covid . And i have horrid anxiety as well, I’m not taking meds cause im trying to menage with cbd. Im sorry you’re miserable every day , it’s rough not being able to feel at peace ! I feel you. In fact the only real relief I’ve gotten in years has been from recreational use of psychedelics….im gonna do more research on this as to why
  4. Hello, Does anyone have any insights into the following ? For years I have felt sick on and off, this winter I had a mental collapse and decided to get bloodwork. Was diagnosed with celiac disease and undifferentiated connective tissue disease (first opinion) I got a second opinion from a rheumatologist who said I have an autoimmune condition but I definitely don’t have a rheumatic one. He referred me to a GI for my celiacs and positive SMA. He also diagnosed me with POTS. But POTS is more of a symptom right ? My symptoms have gotten so much worse ( it’s been 3 months since I stopped eating gluten for the celiacs) . A lot worse during menstruation . Also have developed muscle twitches. Does anyone have anecdotal info as to what their POTS is accompanied by? Does anyone suffer from long covid related POTS?
  5. Hello, Does anyone have any insights into the following ? For years I have felt sick on and off, this winter I had a mental collapse and decided to get bloodwork. Was diagnosed with celiac disease and undifferentiated connective tissue disease. I got a second opinion from a rheumatologist who said I have an autoimmune condition but I definitely don’t have a rheumatic one. He referred me to a GI for my celiacs and positive SMA. He also diagnosed me with POTS. But POTS is more of a symptom right ? My symptoms have gotten so much worse ( it’s been 3 months since I stopped eating gluten) . A lot worse during menstruation . Also have developed muscles twitches. Does anyone have anecdotal info as to what their POTS is accompanied by? Does anyone suffer from long covid related POTS?
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