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pat57

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Posts posted by pat57

  1. I'll be hoping to see it. The following is from the site, I also think its EST- I did not see it mentioned tho.

    an 28, 10:00 pm

    (60 minutes)

    Mystery Diagnosis

    The Woman Who Kept Falling Down

    TV-PG

    Little Avry Conley of Texas has violent bouts of vomiting and diarrhea from the day he's born; doctors try to ease his symptoms, but they only get worse. Linda Smith experiences strange symptoms, including blackouts, after she hits puberty.

    Jan 29, 1:00 am

    (60 minutes)

    Mystery Diagnosis

    The Woman Who Kept Falling Down

    TV-PG

    Little Avry Conley of Texas has violent bouts of vomiting and diarrhea from the day he's born; doctors try to ease his symptoms, but they only get worse. Linda Smith experiences strange symptoms, including blackouts, after she hits puberty.

  2. Delayed forms of orthostatic intolerance have been observed in POTS patients. Some physicians believe POTS symptoms should occur within 10 minutes of standing. However, studies on orthostatic intolerant patients prove that some display a delayed form of orthostatic intolerance in which orthostatic hypotension occurs after ten minutes of standing (Streeten & Anderson, 1992). One study showed that out of 23 chronic fatigue patients, 17 had orthostatic tachycardia alone during the initial period of head-up tilt. However, 22 eventually had obvious orthostatic hypotension after an extended period of time (Bou-Holaigah, Rowe, Kan & Calkins, 1995).

    that is from the link from Erine

    Mechanisms (what is happening with your body while you're symptomatic)

    http://www.dinet.org/what_are_the_mechanisms_of_POTS.htm

    that med they give you is supposed to raise your BP and they watch how your body responds to it. I find it hard to believe being very ill is normal. I'm guessing he means your HR response was normal. (do you have the report?) My HR-for example dropped which is a neurocardiogenic response. Since I have neurocardiogenic syncope I am not well versed in POTS.

    Wanted to say Hi tho and add what I could.

    Hi bellaluna

  3. Take in the love offered by your Drs. , nurses, family , friends and God.

    His perfect love casts out fear. Which is not to say that you should not feel fear- when fears mounts, love will also.

    I'm sure of that. And let each day increase your awareness of the love surrounding you so that each day becomes a

    great and joy filled gift.

    The grace of God will strengthen you, in the inner man. I happen to know.

    Thanks for the post, I appreciate your honesty.

    Sending my love.

    XX00

  4. corina,

    thanks for the reply. I do understand that there are many conditions and illnesses still unidentified. It has been my experience that a Dr. will just say- we don't know. If it mimics a MH problem then you might get the DX of MH.

    It has also been my experience that you treat what ever the DX is, obviously including MH illnesses and conditions. Just as with the physical you expect to improve with treatment. You expect to respond to meds if they are the right meds for the problem, again just as with any illness or condition. Response or lack off can be an indicator of correct DX.

    I did have a DX of pseudo seizes - from a cardio - neuro- psychiatrist while in hospital. As instructed I followed up with psychiatrist who sent me back to a neuro. So- no doors were shut for me.

    I have also been DX with depression 2X by my MD and both times improved without medicine making changes in thinking patterns or life situations. With the later I was lucky that I could make the changes, some things can't be changed. A 3rd time I was DX with depression that was a major depression and I got on the meds ASAP and hung on til it was up to therapeutic levels. This 3rd one was a reaction to chemo so I needed meds and not changes the antidepressants worked.

    I have great respect for anyone battling major depression as it is beyond words.

    Then as I have mentioned I have been addicted to a couple things and got treatment for that- also conciling . I know what it means to

    "white knuckle". Which is to battle your own impulses with clenched fists.

    Through all of this I did not feel disrespected and on the contrary well cared for.

    I think I am going to have to just understand that others are not as fortunate as I am.

    I have noticed that EP offices are a bit strange. They really do not want to see me. I think because they have so many patients. Also tho, my first 3 EPs moved. Weird- huh? I've seen the last 2 once. So maybe its just they screen new patients? My MD is not really comfortable treating my NCS.

    Oh well.

    I appreciate everyones replies. Its helpful ,because it is appearing, that I am not understanding what others have experienced. :)

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