pat57

I don't know, but I will suggest counter maneuvers.

http://www.potsplace.com/

Look for the what helps, and what to aviod, pages.

yes they are!

enjoyed your pics, thanks.

It was cute, but also lots of helpful links.

Your getting there. Your persistence will pay off eventually. In the mean time no wonder your frustrated!

Ernie, Have fun!!!!!

That's good Nina, is she close by for you?

3X a day- is that correct?

Flecainide

it's in her signature......

Sorry Honey, hang in there, and take it one day at a time.

I can't go without mine either, much to my surprise my MD said it may cause sudden death.

I plan to ask the EP if this is true when I see him!

FYI- the med is Norpace.

Randi,

I only know that after being put on Norpace I have not had to crawl. I wish it were the case for your daughter as well.

http://www.arthritispa.com/home.html

under directions you will see they have 3 offices.

I have seen Pritchard and Eisner

"We" are sensitive to dehydration. I'm not saying it's that easy, but worth the simple effort it would take to address it.

Is she on norpace now? I used to crawl around alot too. I also had elevated CPK and low potassium.

Good luck........

I take it as needed too, which is very rare. But say - I got some kind of bad news - which would interfere with sleep, then I need it.

I must get a good nights rest or I feel very poorly.

Are you salt and water loading?

I also have low BP and was given the BB as a vasoconstrictor along with florinf. I am off both meds now. The later raised my BP by double and gave me headaches, the former caused blotchy hands, red with white spots something about blood flow. I was on Norpace with those. I and currently doing well on St. Johns wort ,salt and water loading, Norpace and compression stockings.

I don't have POTS, I have OH and NCS.

Congrats to you both!

I could never stand, and sing, in church. I was always baffled that "everyone" else could. I lip synced. That was the best I could do.

I think that could be compared to fatigue. I do not recall having any attention problems. But that's me.

Normal procedure is to have the Dr. treating the POTS write about any needs or concerns to the Dr. ordering the surgery.

The Dr. ordering the surgery (or whatever it is) does know you have POTS, right? I would ask one or the other to make sure the anesthesiologist is aware regardless of any opinion they have on the matter. I feel certain its an important detail and anesthesiologists want "all" the details.

I have taken it. Felt slightly sedated initially,needing about 3 days to adjust. After that no problems.

I was taking 400mg 2X daily.

Yeah!!

Alcohol is a vasodialator (spelling) I would ask a Dr. first.

on the subject of lactic acid

http://members.tripod.com/Dramo13/Muscles/Lactic_Acid.html

](((((((((((Mary)))))))))))

Thanks needed to get that OUT.