Mrs. Glass Posted April 1, 2006 Report Share Posted April 1, 2006 Well I am back from Vanderbilt, and the news was good. I saw Dr. Robertson, and several other doctors while I was there. I didnt get a lot of information, but what I did get was encouraging. He took me off of the Florinef and the Midodrine, and put me on slow rehab. Of course I was on an upward swing so he didnt see how badly my body reacts, but he got the picture. He said that my autonomics had not shut down, they just werent working right, sluggish I think is how he put it. He said that the rehab should jump start my autonomic system so I could live a normal life. My bp was actually on the low side of normal for the last 2 days that I was there, and a couple of days after, but now it is falling again, and I am starting to feel just as yucky as before. He did say that if my bp started to drop consistently again that I would have to go back on the Florinef.Even though it was very expensive to go, it was still worth it. I saw a urologist while I was there, and found out that I may have to have bladder surgery. Oh yay another surgery! Just what I wanted to hear. Dr. Robertson is hoping that all of my symptoms will go away with the rehab. I hope so. I am tired of all of this. While I was there my husband got the good news that I was approved for disability, so now it wont be so hard on him to pay my medical bills. Sorry that I havent been on the forum for a while. Sitting in front of the computer hurts my eyes horribly, so I try not to sit at it very much at all these days. Hope everyone is doing as well as can be. miss talking to all of you,Vanessa Quote Link to comment Share on other sites More sharing options...
DSM3KIDZ Posted April 1, 2006 Report Share Posted April 1, 2006 I don't mean to sound like an idiot but by rehab do you mean a work out program?dayna Quote Link to comment Share on other sites More sharing options...
gdomaracki Posted April 1, 2006 Report Share Posted April 1, 2006 Thats great you had a good experience! I'm not quite sure what you mean by "slow rehab" and why they need to take you off meds to do so?!?Nicole~ Quote Link to comment Share on other sites More sharing options...
Roselover Posted April 1, 2006 Report Share Posted April 1, 2006 Yes, I'd like to know what "slow rehab" means too. It'll help your autonomic system rekick in? Please share more.~Roselover Quote Link to comment Share on other sites More sharing options...
Jacquie802 Posted April 1, 2006 Report Share Posted April 1, 2006 Ohhh I am so happy for you...hopefully you will feel better soon. Also, congrats on getting the disability, I know what a pain in the butt it is to deal with that... Jacquie Quote Link to comment Share on other sites More sharing options...
Sophia3 Posted April 1, 2006 Report Share Posted April 1, 2006 I am glad you had a positivie experience at Vanderbilt.but like the others, I have never heard the term "slow rehab?" Quote Link to comment Share on other sites More sharing options...
Mrs. Glass Posted April 1, 2006 Author Report Share Posted April 1, 2006 I dont know what slow rehab is either, and I didnt think to ask him that question. He said that he was going to send my pcp a letter explaining everything. The reason he took me off of the meds is because the side effects were worse, and they were not helping that much anyway. All I know is that he said that sometimes rehab will jump start the autonomic system. I just hope that it works. Vanessa Quote Link to comment Share on other sites More sharing options...
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