Clairefmartin Posted March 28, 2006 Report Share Posted March 28, 2006 Hi everyone,I just stopped crying a few minutes ago enough to post - it has been a roller coaster day! As you know I've been battling insurance to get coverage to go see a POTS sepcialist, and this afternoon I found out again that I was being denied to go to UVA. I was devastated - and on top of that my neuro said that my TTT showed no signs of "autonomic disfunction". I tried to tell her that they did the test wrong, and to please read the definition of POTS, and that I meet the criteria, even with the incorrect test. She told me she had "confidence" in the test and its results, and refused to read the info I wanted to fax her. Actually she wouldn't even call me directly, this was all done through her nurse.So onto the good news - before all this happened today, actually this morning, I decided to call my very first cardiologist for grins and ask if he had heard of POTS. I left a message, and his nurse called me back a little while ago, and said that he is very familiar with POTS, and would definitely like to see and help me. The nurse was soooo nice on the phone, I told her what happened with the recent TTT, and she agreed that it needed to be redone. So anyways, they are setting up an appt and they accept my insurance, and they are only 20 minutes away. I am so darn happy I couldn't stop crying. What a mess I am !Thought I'd let you all know...... Quote Link to comment Share on other sites More sharing options...
DSM3KIDZ Posted March 28, 2006 Report Share Posted March 28, 2006 I'm so excited for you! Great News!Dayna Quote Link to comment Share on other sites More sharing options...
Ernie Posted March 28, 2006 Report Share Posted March 28, 2006 Hi,You have a guardian angel looking out for you!Congradulation. Quote Link to comment Share on other sites More sharing options...
ellen Posted March 28, 2006 Report Share Posted March 28, 2006 claire- congratulations, and thankyou for sharing this story with us. It's so easy to give up when an "expert" says he can't find anything. I'm so glad you didn't give up ! Quote Link to comment Share on other sites More sharing options...
dizzygirl Posted March 28, 2006 Report Share Posted March 28, 2006 claire! that si great!! I'm so gald that you are fighting this and tht you are gettinga second opinion!! WAHOO for you!! HUGSlinda Quote Link to comment Share on other sites More sharing options...
UnicornIsis Posted March 29, 2006 Report Share Posted March 29, 2006 THAT'S GREAT!!!!!!!!!!!!!!!!!! After reading the first part of your post I was going to reccomend you get another cardio, but you already did it and I'm so happy for you!!!! Please let me know how it goes and if you're able to make it to UVA after all. UnicornIsis Quote Link to comment Share on other sites More sharing options...
mom4cem Posted March 29, 2006 Report Share Posted March 29, 2006 Sorry about your "former" doctor, but hooray for calling your prior Dr. and they said "Yes"!Let us know how it goes Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted March 29, 2006 Report Share Posted March 29, 2006 I'm so happy for you--sounds like perfect timing! Nina Quote Link to comment Share on other sites More sharing options...
bttrflyamby1981 Posted March 29, 2006 Report Share Posted March 29, 2006 Good luck..........I'm happy you can get a retestI don't like to say this but hope you have a "little" bad day........just enough to give you the answers your looking for.Please forgive me for that, I've wished that for myself as well. Not "knowing" for sure is such a lonely feeling.Lots of ((((hugs)))) AmberIf you don't need a bad day for the results you need, then I take it back. Quote Link to comment Share on other sites More sharing options...
Clairefmartin Posted March 29, 2006 Author Report Share Posted March 29, 2006 Good luck..........I'm happy you can get a retestI don't like to say this but hope you have a "little" bad day........just enough to give you the answers your looking for.Please forgive me for that, I've wished that for myself as well. Not "knowing" for sure is such a lonely feeling.Lots of ((((hugs)))) AmberIf you don't need a bad day for the results you need, then I take it back. I hope I have a completely bad day full of symptoms! I would be thrilled if they could see me at my worst....but with all my records I think even if I'm feeling good that day he'll be able to see whats going on.Thanks everyone! Quote Link to comment Share on other sites More sharing options...
AJVDK Posted March 29, 2006 Report Share Posted March 29, 2006 I am happy for you! Congrats! Quote Link to comment Share on other sites More sharing options...
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