Ernie Posted December 14, 2005 Report Share Posted December 14, 2005 Hi everyone,I just got home a few minutes ago from the first syncope/paralysis triggering test of the week.I was treated so well at the hospital. The neurologist came to see me and reassured me that if something bad happens they will take care of me (ressuscitate). So I agreed to trigger an episode which was filmed on video. I was hooked on 29 wires for an EMG, EKG and EEG.I made it to 8 minutes and fainted+paralyzed. They called the neurologist who did a neurological exam while I was paralyzed. He was amazed that no doctor had ever done one while I was paralysed.He wanted me to move but I could not move anything. they were trying to trigger pain but I did not feel anything either. Then about 5 minutes later I could move my big toe and he worked on from there. He gave me a trick to unparalyse faster and I was able to pick myself up in about half the time. I was also able to feed myself and go to the real toilet!He told me that the test was finished. I could see in his face that he knows the diagnosis. He will review the tests before giving the final diagnosis. I am just so impatient to get it.I could see in his face when he saw me paralyzed that the diagnosis was easy to do and he could not figure out why no doctor figured it out before.It is the first time I don't need and IV after an episode. It's almost as if I had no testing this morning. I feel so good.I asked him to explain what the trick does on my body to help me unparalyze and he said that he would explain it later on.I am thankful for all of you to offer your support and advice during this week. I feel more confident that it will go fine on Friday.LoveErnie Quote Link to comment Share on other sites More sharing options...
Guest Belinda Posted December 14, 2005 Report Share Posted December 14, 2005 I am so happy tha tyou made it through today...and even more glad that they are pinpointing the problem aliitle better and you are learning what helps you get out of the paralysis. You will still be in my thoughts.AND you are very very brave-GOOD FOR YOU!! Belinda Quote Link to comment Share on other sites More sharing options...
morgan617 Posted December 14, 2005 Report Share Posted December 14, 2005 I'm so glad to hear it Ernie! I see your little magic pill on the horizon!!!!! I am especially glad you feel okay. morgan Quote Link to comment Share on other sites More sharing options...
ben_uk Posted December 14, 2005 Report Share Posted December 14, 2005 This is fantastic news Ernie, I'm really happy for you.Sometimes things can go better than we expect and this is one of those times.I hope it goes even better on Friday!Ben Quote Link to comment Share on other sites More sharing options...
Sunfish Posted December 14, 2005 Report Share Posted December 14, 2005 hip hip horray!! i was thinking about you SO much today ernie (and said some prayers) and was SO glad to see your post. not sure why, but i "knew" you'd be okay but am so glad that you're feeling as well as you are in the aftermath and that the doc seems to know his stuff and really be on the right track. i'm really eager to hear the more detailed info once you find out as well.all in all i'm just REALLY HAPPY for you. melissa Quote Link to comment Share on other sites More sharing options...
Jacquie802 Posted December 15, 2005 Report Share Posted December 15, 2005 I'm so happy things went good for you today and you are going to get some answers! Keep us up to date!! Jacquie Quote Link to comment Share on other sites More sharing options...
dizzygirl Posted December 15, 2005 Report Share Posted December 15, 2005 YEAH ERNIE!!!!!OMG! I'm so relieved that you made it thru the test well... and ddint need an IV afterwards to boot!! wow that is great!!I'm impatiently waiting with you to hear what this neuro has to say about your paralyse..and yes our prayers and good thoughts.. were with you today..good for you ernie.. so very glad that you are OK!!Love and hugsLinda Quote Link to comment Share on other sites More sharing options...
Evie Posted December 15, 2005 Report Share Posted December 15, 2005 Oh wow ANSWERS! thats so wonderful Ernie Let us know how your next vist goes! Quote Link to comment Share on other sites More sharing options...
Michelle Sawicki Posted December 15, 2005 Report Share Posted December 15, 2005 I'm happy to hear all went well with the test. Michelle Quote Link to comment Share on other sites More sharing options...
mom4cem Posted December 15, 2005 Report Share Posted December 15, 2005 That is great that everything went well plus a dr. who knows what he is looking at and doing, priceless. I hope this will lead to some good news with helping you. Quote Link to comment Share on other sites More sharing options...
Guest Julia59 Posted December 15, 2005 Report Share Posted December 15, 2005 I'm happy that you did well on the testing Ernie! And also happy you didn't feel horrible afterwards.I hope they can help you---and find the right meds to give you a better quality of life.Hugs and prayers to you,Julie :0) Quote Link to comment Share on other sites More sharing options...
taylortotmom Posted December 15, 2005 Report Share Posted December 15, 2005 Glad you had such a positive experience! I am anxious to hear your doctor's explanation of the paralysis. It sounds intriguing.Carmen Quote Link to comment Share on other sites More sharing options...
Sue Posted December 15, 2005 Report Share Posted December 15, 2005 WOW, I am very curious to see what the outcome of your testing shows!!! The paralysis thing happens to me as well, very scary. II swear even my tongue can't move!!! have been misdiagnosed as having a stroke many times. I am greatful to not have had one (a stroke) but I am look forward to see what the outcome of your testing is...((Hugs)) and best wishesSue Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted December 15, 2005 Report Share Posted December 15, 2005 Ernie, I'm so relieved that you've made it home in one piece...and so darned happy for you that you FINALLY got the type of treatment in hospital that you deserve. I hope that the answers he has for you give you some measure of hope, and better avenues of treatment. You are one brave lady! Nina Quote Link to comment Share on other sites More sharing options...
ariella Posted December 15, 2005 Report Share Posted December 15, 2005 wow, Ernie, I'm just catching up on reading posts and read your other post about your secret...I am so relieved to hear that you are home safe and sound. Thinking of you and saying a prayer.Ariella Quote Link to comment Share on other sites More sharing options...
Roselover Posted December 15, 2005 Report Share Posted December 15, 2005 Oh I am so emotional this week, your report brought tears of joy to my eyes. Please let us know what they tell you... I'm anxious too. So glad you let us in on this and allowed us to pray for you!Love Roselover Quote Link to comment Share on other sites More sharing options...
Miriam Poorman-Knox Posted December 15, 2005 Report Share Posted December 15, 2005 YOU are the WOMAN!!!!!!!!!!!!!! How brave to have this done. And SCORE they found something.Our journey is long and difficult, yet one or two docs, health care prof. make a LIFE difference.Miriam Quote Link to comment Share on other sites More sharing options...
JenniferInOhio Posted December 15, 2005 Report Share Posted December 15, 2005 Hi. I'm glad everything went well and you are fine. It sounded like a pretty scary test to me. Do you have any idea what the doctor will say it is? Quote Link to comment Share on other sites More sharing options...
Ernie Posted December 15, 2005 Author Report Share Posted December 15, 2005 Hi everyone,You are all so nice to encourage me and cheer me up. You are giving me strenght to continue my quest. The neurologist did not tell me or hint me on any disorder but the technician told me that the test I did is usually to rule out epilepsy. I am pretty sure I don't have epilepsy.The technician also told me that this specialist has seen many "rare birds" and he is a real good diagnotician. I hope I have found "House"!!!!!!!!Love you all, Quote Link to comment Share on other sites More sharing options...
calypso Posted December 16, 2005 Report Share Posted December 16, 2005 Yay Ernie! I have been thinking of you and worrying about you (even though we're not supposed to worry about things we can't control, I still do).I am so glad you have found a "House"-like doc and hope you get a treatable condition diagnosis.amy Quote Link to comment Share on other sites More sharing options...
yogini Posted December 16, 2005 Report Share Posted December 16, 2005 (edited) Ernie,So glad to hear everything went well. Good luck tomorrow and keep us posted. Things sound very promising and I'm really looking forward to hearing the results! -Rita Edited December 16, 2005 by rqt9191 Quote Link to comment Share on other sites More sharing options...
ben_uk Posted December 16, 2005 Report Share Posted December 16, 2005 Good luck for today Ernie!Let us know how you got on.Ben Quote Link to comment Share on other sites More sharing options...
mom4cem Posted December 16, 2005 Report Share Posted December 16, 2005 Hope everything went well today and you are feeling good. Please let us know. Quote Link to comment Share on other sites More sharing options...
corina Posted December 16, 2005 Report Share Posted December 16, 2005 ernie,you really are a very courageous lady. you are an inspiration for all of us. thinking about you and hope that everything goes well today.love,corina Quote Link to comment Share on other sites More sharing options...
avais1 Posted December 16, 2005 Report Share Posted December 16, 2005 I am so pleased for you, Ernie! Since today is Friday, I am sending every positive thought I can your way! Keep us posted! Quote Link to comment Share on other sites More sharing options...
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