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Where are you all getting your infusions from lately?


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It’s going to be a problem. One infusion pharmacy here discharged all their hydration patients who don’t use it daily on a consistent basis, and reduced the daily ones to half their usual volume. I have 16 liters or so left, and really hope it gets me through to my next possible refill. I need 6-8 liters the week of IVIG at the very least. I’m hearing they won’t have a reasonable supply until summer. My infusion nurse and doctors will fight for me, but I think there are hard and fast rules in place, and it won’t matter. 
 

The big hospital system in MA has canceled non-emergent, elective procedures for this reason. It’s scary stuff. 

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