Wayward_Phoenix Posted May 24 Report Share Posted May 24 Hello, Does anyone have any insights into the following ? For years I have felt sick on and off, this winter I had a mental collapse and decided to get bloodwork. Was diagnosed with celiac disease and undifferentiated connective tissue disease. I got a second opinion from a rheumatologist who said I have an autoimmune condition but I definitely don’t have a rheumatic one. He referred me to a GI for my celiacs and positive SMA. He also diagnosed me with POTS. But POTS is more of a symptom right ? My symptoms have gotten so much worse ( it’s been 3 months since I stopped eating gluten) . A lot worse during menstruation . Also have developed muscles twitches. Does anyone have anecdotal info as to what their POTS is accompanied by? Does anyone suffer from long covid related POTS? Quote Link to comment Share on other sites More sharing options...
bunny Posted June 13 Report Share Posted June 13 I'd caution on the Celiac diagnosis. I had a Dr claim I had Celiac and told me to go gluten-free for two weeks and have a follow-up. Celiac didn't sound right to me, so I went on an all-out gluten binge. Pasta and bread at every meal. My GI symptoms improved! Of course, the Dr. was furious at the follow-up appointment. My real issue was small intestinal bacterial overgrowth, but none of the 15 doctors I saw ever figured that out. That was me borrowing a former professor's microbiology lab and doing my own research and solution. 2.5 years of pure h*** reversed in 10 days, and it's been 15 years since then, no issues. Quote Link to comment Share on other sites More sharing options...
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