KaraKS Posted May 7 Report Share Posted May 7 I am looking for a health professional (preferably a GP, in the ACT) I can see that really knows about managing HSD, dysautonomia (with MVP), POTS, inflammatory arthritis (PsA). I can travel to surrounding NSW, maybe even Sydney if I have to but Melbourne is too far (I know there is a POTS cardiologist there). I am very tired of blank looks, references to managing 'lifestyle factors' (already do all that to best of recommendations), and referrals to specialists who are dismissive and silent. Quote Link to comment Share on other sites More sharing options...
Sarah Tee Posted May 7 Report Share Posted May 7 @KaraKS, I have found this Facebook group to be good for local recommendations: https://www.facebook.com/groups/dysautonomiainternationalausupport/ (If you don’t have a Facebook account, it’s worth creating one just for this purpose. You can always delete it later.) I’m afraid I live near Melbourne but just wanted to say hello as a fellow Aussie. I am sure some other folks will be along with recommendations soon. Quote Link to comment Share on other sites More sharing options...
LWills Posted May 11 Report Share Posted May 11 I see Dr Ron Granot in Sydney, he a neurologist and was amazing at diagnosing my small fibre neuropathy that causes autonomic dysfunction. In Canberra I have seen a lovely cardiologist called Dr Soh in Deakin who gave me plenty of time discussing how to manage blood pressure issues. I haven’t found the perfect GP. I hope that helps, good luck. Quote Link to comment Share on other sites More sharing options...
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