izzy Posted August 27, 2023 Report Share Posted August 27, 2023 Hello! New to dinet and looking for GI, Rheumatologist, Neurologist and Cardiologist and possibly Endocrinologist that are good with dysautonomia and other related health conditions. I have been diagnosed with with various disorders from all except nuerology thus far although the GI doctor doesn't have a full picture yet and may not be able to fully diagnose me. I'm also looking for a Rockstar primary care wether it be a nurse practioner or DO. Should I go to Mayo clinic, Cleveland clinic, somewhere in Texas or Colorado to name a few places I am willing to travel. Although I'd love some local kansa city doctors too. Lastly any natural things help you with any of these types of issues? Thanks for any help! Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted August 27, 2023 Report Share Posted August 27, 2023 Welcome to the forum. We maintain a list of specialists here: Physicians - Dysautonomia Information Network (DINET) You can also search in the forum eg "Kansas City" This topic might have helpful information: https://www.dinet.org/forums/topic/25956-new-to-the-forum-from-kansas-city/ in case you don't get any other replies! Quote Link to comment Share on other sites More sharing options...
Sarah Tee Posted August 29, 2023 Report Share Posted August 29, 2023 @izzy, there is a Facebook support group for Kansas: https://www.facebook.com/groups/DysautonomiaInternationalKSSupport/ If you don’t have a Facebook account, it might be worth making one just to join this group. (You can always close it again later.) Despite the occasional annoyance, I have found my local one very helpful for local knowledge of specialists. Quote Link to comment Share on other sites More sharing options...
MaineDoug Posted September 14, 2023 Report Share Posted September 14, 2023 Welcome Izzy, I didn’t receive adequate care until I transferred to better docs at major university affiliated medical centers! Don’t know if it counts as natural but drinking lots of fluids (2+ gallons) and salt (10 grams) are what has helped me the most. Quote Link to comment Share on other sites More sharing options...
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