albertspa Posted November 8, 2023 Report Share Posted November 8, 2023 @MikeO Here's an update on whether you would be able to use it outside of the US, even if you were to have it shipped through a third party. It's kind of a vague response. Quote Link to comment Share on other sites More sharing options...
Sarah Tee Posted November 9, 2023 Report Share Posted November 9, 2023 Thanks for the extra info, folks. Someone who purchases one in the US will be bound to go on holiday overseas and find out whether it still works, I guess. Although that may not be the same as someone from Europe buying one in the US and having a European phone service provider and trying to sign into the app once they got home. For example, maybe the app would be blocked from the European Apple Store (or wherever people get apps these days). If it were a stand-alone device (no app needed), like a blood pressure monitor, people would be able to use them overseas. Like supposing it had a basic information read-out that showed on the base station, or a unit like CGMs have that you wear on your belt or something and then download the info to your computer or phone. Oh well, another company or Stat Health itself may make something like that one day. It’s all very interedting and exciting. I think that measuring cerebral blood flow is going to be BIG in the next few years. It’s apparently gaining in popularity in intensive care settings. Quote Link to comment Share on other sites More sharing options...
MikeO Posted November 9, 2023 Report Share Posted November 9, 2023 17 hours ago, albertspa said: @MikeO Here's an update on whether you would be able to use it outside of the US, even if you were to have it shipped through a third party. It's kind of a vague response. The service requires a active internet connection as the app's core computing is done in the cloud so service can be a issue no matter where one lives. I also get a feeling that one's data might be or end up being shared with other interested players. keep in mind these folks and the investors are doing this for money and not just out of the kindness of their hearts. Quote Link to comment Share on other sites More sharing options...
MikeO Posted November 9, 2023 Report Share Posted November 9, 2023 Here STAT's response to the device being available in other countries. Quote Link to comment Share on other sites More sharing options...
MikeO Posted November 9, 2023 Report Share Posted November 9, 2023 Well new email from STAT. My take is they are pushing for funding just can't capture the whole email thread. My Doc says does have reservations for good reasons. I am sitting off to the side for now as nothing has been proven, cost for a wellness device is high and how does the product help me? i could see a preemptive alert that i am about to pass out but i doubt this is in the works (FDA stuff). I already know that if i drinks fluids and watch what i eat i do better. some folks are think this will show or cure there issues i am refraining from this. Just my 2 cents. Quote Link to comment Share on other sites More sharing options...
Sarah Tee Posted November 22, 2023 Report Share Posted November 22, 2023 I added this quote in my Doppler ultrasound thread, but thought I’d add it here too: Quote Cerebral blood flow (CBF) is the critical missing vital sign – poor CBF is the cause of common orthostatic symptoms such as dizziness and brain fog. My Dutch colleagues have measured this with ultrasound on over a thousand patients. However, it’s not easy to measure CBF, so most clinics approximate using secondary metrics of heart rate and blood pressure, which often mislead. Unfortunately, this frequently leads to the wrong conclusion that the symptoms are just psychological, when in fact, there are physiological abnormalities. Dr Peter Rowe in Stat press release Quote Link to comment Share on other sites More sharing options...
Jyoti Posted December 21, 2023 Report Share Posted December 21, 2023 For anyone who doesn't get this by email, instant cred for STAT? Welcoming Dr. Satish Raj to STAT's Scientific Advisory Board! Dr. Satish Raj has joined as a STAT Scientific Advisor! Satish R Raj, MD, MSCI is a Cardiologist and founded the Calgary Autonomic Investigation & Management Clinic at University of Calgary. Previously, he spent 12 years at the Vanderbilt Autonomic Dysfunction Center in Nashville, TN, and was a past President of the American Autonomic Society. He is focused on understanding and treating POTS, VVS, and OH. Now, Dr. Raj is excited about using STAT to ensure treatment of autonomic disorders goes beyond just heart rate and blood pressure, to prioritize blood flow to the head! Quote Link to comment Share on other sites More sharing options...
MikeO Posted December 21, 2023 Report Share Posted December 21, 2023 Thanks! @Jyotihad to prod an update of of them very exciting news.... Quote Link to comment Share on other sites More sharing options...
Sarah Tee Posted December 21, 2023 Report Share Posted December 21, 2023 Good to see Dr Raj on board! Also, maybe this means sales will open to Canada soon. Edit: Just remembered that Dr Raj got a grant for a transcranial Doppler set-up last year. So he has presumably been measuring cerebral blood flow in his patients. Quote Link to comment Share on other sites More sharing options...
Sarah Tee Posted April 8 Report Share Posted April 8 Could someone who is party to the updates/Facebook group remind me of when the company expects to start sending out the device? Quote Link to comment Share on other sites More sharing options...
Sarah Tee Posted April 16 Report Share Posted April 16 The latest newsletter has some info on release times later this year. March 2024 newsletter It also shows a couple of cerebral blood flow trend graphs. Boo hoo. It really brought it home to me how much I need this. See the heading “Stat data snippet from Shivani”. (My condition, like a few others, only shows up in cerebral blood flow. So right now I have nothing to measure, and neither does my doctor.) Quote Link to comment Share on other sites More sharing options...
MikeO Posted April 16 Report Share Posted April 16 Not sure what is up but my email updates from stat went dead. to be honest i do not have faith in the product as to helping. Quote Link to comment Share on other sites More sharing options...
Sarah Tee Posted April 17 Report Share Posted April 17 Here you can see the monitor being worn by someone with POTS. (Click to enlarge.) The green top line shows cerebral blood flow trend, and the bottom blue line shows heart rate. Not sure what the black dots stand for. There are more graphs, with commentary, in the newsletter. Quote Link to comment Share on other sites More sharing options...
Sarah Tee Posted April 17 Report Share Posted April 17 Fair enough, @MikeO. One day there may be something similar that can be ordered by your doctor, like a Holter monitor, without the patient having to make a purchase. Quote Link to comment Share on other sites More sharing options...
Sarah Tee Posted April 29 Report Share Posted April 29 I was wondering whether you can wear the ear device overnight … The answer is yes, although I don’t think it’s required for data collection. I suspect I would find it uncomfortable, but I’m sure it would be fine for most people. Quote Link to comment Share on other sites More sharing options...
MikeO Posted April 29 Report Share Posted April 29 10 minutes ago, Sarah Tee said: I was wondering whether you can wear the ear device overnight … The answer is yes, although I don’t think it’s required for data collection. I suspect I would find it uncomfortable, but I’m sure it would be fine for most people. I would have interested in seeing what my body does while sleeping. i don't think i would be inclined to wear it long term while in bed but in the short term it might have value. Quote Link to comment Share on other sites More sharing options...
Sarah Tee Posted May 8 Report Share Posted May 8 It is obvious that I am obsessed with this device! I wanted to report that I saw a post in another forum from someone who has signed up to be a beta tester from July. They went to an open day at the company, and were impressed by the product, the staff/inventors and the connections they have made with researchers. Which is nice to hear. Quote Link to comment Share on other sites More sharing options...
MikeO Posted May 9 Report Share Posted May 9 On 5/8/2024 at 8:05 AM, Sarah Tee said: It is obvious that I am obsessed with this device! I wanted to report that I saw a post in another forum from someone who has signed up to be a beta tester from July. They went to an open day at the company, and were impressed by the product, the staff/inventors and the connections they have made with researchers. Which is nice to hear. I saw the open house invite show up on FaceBook. Happy to hear the event went well. Quote Link to comment Share on other sites More sharing options...
Sarah Tee Posted May 20 Report Share Posted May 20 @ramakentesh, I saw in your post about clonidine that you respond to it differently at different times of the day. Have you seen this gadget? What do you think of it? Do you think it would show anything interesting if you could check your cerebral blood flow a.m. and p.m.? (My symptoms change during the day too, although I go from symptomatic most of the day to almost normal around midnight.) Quote Link to comment Share on other sites More sharing options...
Sarah Tee Posted May 30 Report Share Posted May 30 Another interesting graph (although not surprising). I wish they would show a graph that reveals some unknown territory, such as one from someone with CFS or fibromyalgia. Click or tap to enlarge. Quote Link to comment Share on other sites More sharing options...
Sarah Tee Posted June 22 Report Share Posted June 22 Link to archive of all newsletters: https://us21.campaign-archive.com/home/?u=2113bd09885b19f0c11d1a14e&id=907827e24c Quote Link to comment Share on other sites More sharing options...
bumpkin Posted June 24 Report Share Posted June 24 I would settle for one of these at this point 😅 https://www.npr.org/2014/08/17/340906546/the-machine-that-tried-to-scan-the-brain-in-1882 But now I'm kinda determined to keep digging around to see if there's any affordable open-source wearable projects in the works, don't see why we should be limited to one company's vision and price point and data policies Quote Link to comment Share on other sites More sharing options...
Sarah Tee Posted July 11 Report Share Posted July 11 There was a presentation generated at the Dys Int conference by a group of autonomoc researchers who tried out the gadget with conference attendees. You can find the poster (?) on the company’s Facebook page: https://www.facebook.com/wearlumia I haven’t had the chance to study it yet. Best to open on big screen. Quote Link to comment Share on other sites More sharing options...
tenef246 Posted July 22 Report Share Posted July 22 Does anyone know if this device is available to buy in the UK or anything similar? Quote Link to comment Share on other sites More sharing options...
MikeO Posted July 22 Report Share Posted July 22 4 hours ago, tenef246 said: Does anyone know if this device is available to buy in the UK or anything similar? not yet is what i know... Quote Link to comment Share on other sites More sharing options...
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