Pistol Posted February 27, 2023 Report Share Posted February 27, 2023 Hi All - saw this article on the news this morning A condition called POTS rose after covid, but patients can’t find care (msn.com) Quote Link to comment Share on other sites More sharing options...
Sarah Tee Posted February 27, 2023 Report Share Posted February 27, 2023 I hope it helps people who are still in the dark about their symptoms to get on a waiting list, and maybe gets some more funding for autonomic clinics in the US. But two years' wait with POTS even after you get a referral – yikes. I am lucky that I got referred before the pandemic and "only" had to wait six months to see an autonomic specialist here in Australia. I imagine his waiting list has blown out now. Quote Link to comment Share on other sites More sharing options...
Pistol Posted February 27, 2023 Author Report Share Posted February 27, 2023 @Sarah Tee I became ill with POTS in 2009, and because I did my own research and realized what I have I right away got on a waiting list for an autonomic specialist. I was diagnosed within 2 years, but at that time the average time to diagnosis was 6 years! Quote Link to comment Share on other sites More sharing options...
MikeO Posted February 27, 2023 Report Share Posted February 27, 2023 Some of the waiting or even availability (providing autonomic testing) is frustrating. In wisconsin we had two hospitals that worked with dysautonomia folks both shut down the program and left a lot of folks out in the cold. I see the one Doc in the article that was in the milwaukee clinic is now working at a University in another state. Quote Link to comment Share on other sites More sharing options...
Ranga Posted February 27, 2023 Report Share Posted February 27, 2023 I have given up on conventional doctors.. as the article says, acupuncture, PT and yoga have been my support for the last 4 years. Quote Link to comment Share on other sites More sharing options...
MikeO Posted February 27, 2023 Report Share Posted February 27, 2023 I am stuck on why i caught dysautonomia in the first place and i have been pushing back with my doc's for answers. Not sure that i care that i have issues that can't be fixed. it is what it is but i would like to know why. Every other health issue i have has been identifiable and i am good except for the autonomic dysfunction. IMO testing is key just not sure why some institutions avoid it when they have the ability to test. My best thought is there is no money in it or we are too much to handle. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.