Sea otter Posted September 19, 2022 Report Share Posted September 19, 2022 I was recently diagnosed with POTS, after 3 years searching for diagnosis. Besides POTS, I have some other "weird" symptoms. Does someone maybe have similar symptoms? My symptoms are: pain and pulsing sensation by the left ear (left side of the face). Like something is standing there and is pressing something, especially when I am eating, talking, laughing, moving my eyes... Pain is spreading to left front side of the neck with some nodules and itching. Sometimes pain is going to my left side of body - arm, thorax, leg and some spazms also occur on the left side of my body. Sometimes my left side of face is red, like it is burning inside and is little swollen. It reacts usually to heat but it's not the rule. I have crackling and fullness in my left ear; with moving, sounds, swallowing; there is also no rule. Those symptoms started along with POTS symptoms, but doctors are clueless about it. Quote Link to comment Share on other sites More sharing options...
Ranga Posted September 20, 2022 Report Share Posted September 20, 2022 I also have symptoms predominantly on the left - starting from my feet and toes, calf, hip, sigmoid colon, neck and sinus. My guess is there could be some nerve or circulation issue on that side. Quote Link to comment Share on other sites More sharing options...
Sea otter Posted September 20, 2022 Author Report Share Posted September 20, 2022 I am thinking the same, that the cause maybe is pinched nerve somewhere on the left side. I was hoping this could be cause for POTS symptoms, but all tests were ok. I wonder if this is because of POTS or something else is going on. Quote Link to comment Share on other sites More sharing options...
DavidinPhiladelphia Posted May 14 Report Share Posted May 14 Hello, Curious if the OP ever got this figured out? My son is having left side issues too. He draws a line down the center of his face and says the left side just feels different (left head, face, even tongue and roof of mouth, and left arm and left leg). He just got diagnosed with Dysautonomia, but his doctors said that these were not typical symptoms of that. Quote Link to comment Share on other sites More sharing options...
Sea otter Posted May 14 Author Report Share Posted May 14 @DavidinPhiladelphia I am sorry for your son's struggles. Unfortunately doctors are clueless about my symptoms. They told me it could be POTS related. That's all I know. But I still think there is something else going on. I am hoping they will figure out what's going on with your son. Quote Link to comment Share on other sites More sharing options...
Sushi Posted May 16 Report Share Posted May 16 On 9/19/2022 at 7:41 PM, Ranga said: I also have symptoms predominantly on the left - starting from my feet and toes, calf, hip, sigmoid colon, neck and sinus. My guess is there could be some nerve or circulation issue on that side. I also have a host of problems that are just on the left side of my body. I am seeing an osteopath who has found misaligned bones in my skull on the left side that may be causing my problems. Fingers crossed! Quote Link to comment Share on other sites More sharing options...
Jyoti Posted May 16 Report Share Posted May 16 My left side is a mess too! From the top of my head to my toes. The things that clearly are out of alignment are all on one side. At least we can know that this is not unusual? Still...it is curious. I wonder why bones on the left side of your skull would end up misaligned, @Sushi? Quote Link to comment Share on other sites More sharing options...
Sushi Posted May 18 Report Share Posted May 18 On 5/16/2024 at 1:37 PM, Jyoti said: My left side is a mess too! From the top of my head to my toes. The things that clearly are out of alignment are all on one side. At least we can know that this is not unusual? Still...it is curious. I wonder why bones on the left side of your skull would end up misaligned, @Sushi? I asked that—likely from some injury. I did have a few blows to the head early in life. Quote Link to comment Share on other sites More sharing options...
Sarah Tee Posted May 18 Report Share Posted May 18 If you can find an old-fashioned doctor with good physical examination skills, they might pick something up by listening: https://www.ncbi.nlm.nih.gov/books/NBK289/ Quote Link to comment Share on other sites More sharing options...
MikeO Posted May 18 Report Share Posted May 18 my left side has issues as well but i have improved the symptoms notably. i have no inclination or theory as to why outside of some vascular stuff. as long as i can stay the course and feel better i am good. Quote Link to comment Share on other sites More sharing options...
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