JenniferInOhio Posted August 14, 2005 Report Share Posted August 14, 2005 I'm sure this has been asked a few hundred times before. Is there a past thread that I can look at?Just wondering what everyone takes? Right now, I'm on nadolol (beta blocker). Also drinking a lot of gatorade. Quote Link to comment Share on other sites More sharing options...
Ernie Posted August 14, 2005 Report Share Posted August 14, 2005 Hi,If you want to look at past threads you can do a search. The search is located on the top right section on your screen.There is also a section "Answers to Common questions" that Mighty Mouse has collected.I take Propranolol (beta blocker) and Proamatine (alpha agonist).Ernie Quote Link to comment Share on other sites More sharing options...
JenniferInOhio Posted August 14, 2005 Author Report Share Posted August 14, 2005 Thank you ~ I'll go look right now. Quote Link to comment Share on other sites More sharing options...
Madwife Posted August 14, 2005 Report Share Posted August 14, 2005 Jeniffer,I take:- Fludricortisone (Florinef) 0.2mcgs BD- Propanolol 80mgs OD- Venlafaxine (Exeffor) 75mgs OD ...(reduced from 450mgs)- Amytriptiline 25mgs- Carbamazepine 400mgsQuite a collection...I feel like a walking pharmacy at times! Don't shake me too hard or i'll rattle!!!! Quote Link to comment Share on other sites More sharing options...
joyrose Posted August 14, 2005 Report Share Posted August 14, 2005 I take atenolol, clonidine, Topimax, morphine, Mestinon, Paxil, Robinul, Then as needed: visatril, Zofran, Chloral hydrate, Ditropan,I've been on massive doses on the first 2 drugs. Since starting on the Chloral hydrate a month ago, I've been able to cut back on my paxil, morphine, ambien and doxepin. -Deb Quote Link to comment Share on other sites More sharing options...
tracy Posted August 14, 2005 Report Share Posted August 14, 2005 I take Lappressor and Levsin twice a day. Drink gatorade and eat alot of salt.(for my blood pressure, very low) I also wear compression hose. Was just diagnosied in July. Not sure if I need anything else. I feel better, but I wish I could feel atleast alittle better then I do now. Quote Link to comment Share on other sites More sharing options...
Eillyre Posted August 14, 2005 Report Share Posted August 14, 2005 I'm currently on Mestinon, Melatonin, and NeuroHelp supplements. I consume huge amounts of salt (1/4 tsp at a time) with lots of fluids, too.I have previously taken, among many other non-POTS related things, Florinef and Midodrine. Quote Link to comment Share on other sites More sharing options...
Sunfish Posted August 14, 2005 Report Share Posted August 14, 2005 jennifer - you're right that there have been a good number of posts on this over time, and you will find lots of info if you do a search (if you haven't already), but i don't think i've ever actually answered one of these posts myself so figured i'd give you my med list. it's pretty lengthy but know that i have definitely not always been on so many meds. i've had times where i was on no meds & just did lots of fluids & salt. but currently, copied from the list i typed up recently to give to my new docs (includes med, dose, frequency, & reason)...Mestinon 30mg TID (every 4-5 hrs while awake) AN/OI/HypotensionInderal/Propranolol 10mg TID (every 4-5 hours while awake) AN/OI/TachycardiaMidodrine 10mg TID (every 4-5 hours while awake) AN/OI/HypotensionCortef 15mg in AM, 5mg @ 4pm Cortisol DeficiencyClarinex 5mg daily (AM) AllergiesProtonix 40mg daily (AM) Reflux/NauseaDDAVP .2mg daily (PM) Help Regulate Fluid Retention Seasonale 1pill daily (PM) OI/ Ovarian CystsZelnorm 6mg BID (AM&PM) Slow GI Motility (Gastroparesis, Constipation, etc)Flonase (spray) BID (AM&PM) AllergiesReglan 10mg PRN Gastroparesis/Nausea/VomitingMesalamine (enema) 4g PRN (PM) Ulcerative Colitisi also use various shampoos, creams, etc. for skin problems i have but think there's more than enough listed already.other "stuff" currently used includes intermittant catheterization 2-4 times/day, lots of fluids (water, gatorade) & salt, compression hose (30-40mmHg waist high) whenever possible (i.e. when not too hot), wheelchair PRN, & IV saline PRN.you'd never guess that i hate taking meds, eh? but they keep me functioning these days MUCH better than i would be otherwise.:-)melissa Quote Link to comment Share on other sites More sharing options...
AJVDK Posted August 14, 2005 Report Share Posted August 14, 2005 Hello,I take theophylline 200 mg er, fludrocortisome .1mg, bupropion 100 mg twice a day!Have a great day!Amy Quote Link to comment Share on other sites More sharing options...
DSM3KIDZ Posted August 14, 2005 Report Share Posted August 14, 2005 Well I takemestonin -newzoloft -new 25mgaciphex 20mgAs neededReglan 5mg (gastroparesis)pheregan (nausea) or zofran (nausea)Imitrex and vistril (for migraines)seasonal allergies -singular,zertec & nasal spray.Sounds like a lot when I write it down. Most is as needed or for a few months a year. dayna Quote Link to comment Share on other sites More sharing options...
DancingLight Posted August 14, 2005 Report Share Posted August 14, 2005 well, here it is...FUN with body chemistry! here's my dosing schedule and meds...it's insane! sorry the list didn't transfer so great from word...emily1. CORGARD 15 mg in morning2. DDAVP.1 mg ? 2x/day3. ALLEGRA180 mg in the morning4. SINGULAR10 mg in the evening5. EFFEXOR-XR 75 mg in afternoon6. ALESSEDAILY, CONTINUOUSLY?WITHOUT BREAKS7. TOPAMAX25 mg in evening8. DETROL LA 2 mg at bedtime9. DOXEPIN 1 ml at bedtime10. XANAX (Compounded).0625 mg ? 1-2 capsules 2-3x daily 11. VITAMIN B12?500 mcg Daily12. VITAMIN E ? 400 IU in evening13. SHAKLEE PROBIOTICS -- Daily14. FREEDA VITAMINS -- Daily15. OS-CAL (2x daily)16. TYLENOL 8 HR ?PRN17. ZOFRAN ODT ? 4 mg -- PRN18. COLACE?PRN19. AMBIEN?Stopped completely on 7/29 Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted August 14, 2005 Report Share Posted August 14, 2005 http://www.dinet.org/what_helps.htm Quote Link to comment Share on other sites More sharing options...
dizzygirl Posted August 14, 2005 Report Share Posted August 14, 2005 hello..i takeMestinon 120mg 3x's adayPropranolol 60mg 3x's a daytrazadone 200mg bedtimeambien 10mg bed timeprevacid 20mg(?) 2 times a dayzyrtec once a daylactaid -- when ever I have milk productsImitrex PRNdarvacet PRNtigan PRN Quote Link to comment Share on other sites More sharing options...
dizzygirl Posted August 14, 2005 Report Share Posted August 14, 2005 oh and I drink lots of water and gatorade.. and wear compression hose.. up the salt intake.. and my personal favorite.. green olives or dill pickles... the have alot of salt in then.. if I eat Like half the jar (HAHAHA) it makes me feel alittle better.. Quote Link to comment Share on other sites More sharing options...
Lukkychrm42 Posted August 15, 2005 Report Share Posted August 15, 2005 Right now:propranolol 10 mg 3X day (heart rate and fluid retention)midodrine 5 mg as needed (usually 1/day in late AM or early pm) (low BP)protonix 40 mg/ day (acid reflux)9000 mg sodium/day (fluid retention for low blood volume)LOTS of water/gatorade compression hoseB-12, ibuprofen, acidophilus, pepto bismol as needed (IBS, chronic tendonitis, and B-12 cuz I'm vegan)I'll probably be on DDAVP soon- it was discussed recently, but we're trying the salt/fluids cuz it's lots cheaper! Procrit was also discussed, because not much is working to build up the blood volume. Quote Link to comment Share on other sites More sharing options...
Aprilmarie52 Posted August 15, 2005 Report Share Posted August 15, 2005 I take florinef .1 mg and zoloft 100 mg Quote Link to comment Share on other sites More sharing options...
goldicedance Posted August 15, 2005 Report Share Posted August 15, 2005 I take:Mestinon - 60 mg two or three times a dayZoloft 150 mg a day to prevent migraines and help with POTS900, 1200, and 1500 mg of neurontin to prevent migraines and help with POTSDDAVP when absolutely necessaryAmbien - as neededPercocet - as neededCombivent Quote Link to comment Share on other sites More sharing options...
JenniferInOhio Posted August 15, 2005 Author Report Share Posted August 15, 2005 Wow - I didn't realize there were so many different medications used to treat this. Obviously, many of you take some meds for other reasons too.Thank you so much for sharing. Quote Link to comment Share on other sites More sharing options...
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