RunFoerster Posted July 16, 2017 Report Share Posted July 16, 2017 Hi everyone, I was diagnosed with NCS a while ago after I was fainting quite often actually. But lately, I have trouble breathing while sleeping and I have to put several pillows under my head to sleep better. I can't get more than few hours of sleep. The Doctor said, it could be orthopnea, but he would like to check it a second time.... Did anybody else had the same problem? Is this connected too with NCS or is it something else? Thanks! Quote Link to comment Share on other sites More sharing options...
TCP Posted July 17, 2017 Report Share Posted July 17, 2017 Hi I often wake up gasping for breath during the night. I did it this morning after 4 a.m. It can be pretty scary. I opened a window and drank some water and it took me a while to get back to sleep again. I have EDS, POTS and possibly Mast cell issues. I was at one stage stopping breathing whilst asleep and was checked out for sleep apnea. It did settle down after a while thankfully. Quote Link to comment Share on other sites More sharing options...
SarahA33 Posted July 18, 2017 Report Share Posted July 18, 2017 Hi, runfoerester..Welcome to DINET. Sorry this is happening, it sounds scary. Have you looked into sleep apnea or considered seeing a pulmonologist? If the pillows help, then maybe you could try elevating the head of your bed. Quote Link to comment Share on other sites More sharing options...
Debbie Rose Posted July 26, 2017 Report Share Posted July 26, 2017 I agree with Sarah, So sorry you are going through this. There may be a sleep apnea or other obstructive apnea going on. I recently received the diagnosis and am trying to get used to my new best friend-my CPAP machine Debbie Quote Link to comment Share on other sites More sharing options...
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