bigtrouble Posted December 29, 2015 Report Share Posted December 29, 2015 From Rare Skin Conditionby Barcroft TV 5:51 minsA housebound woman feels like she is burning alive from the inside because of a rare genetic condition. Samara Rose Ingraffia suffers from erythromelalgia or Man on Fire syndrome, which leaves her feeling like she is experiencing constant second degree burns. Videographer / Director: Dustin Bacon Producer: Dan Howlett, Nick Johnson Editor: Sonia Estal=================I don't know if I can post links here. If you do a search, I'm sure you will find stuff.The video mentions that she also has Raynaud's syndrome.Her skin look reddish and burned.She keeps the room temp at 17 °C (65 °F). She always has fans on. She barely sleeps. Quote Link to comment Share on other sites More sharing options...
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