Achilles2323 Posted May 17, 2013 Report Share Posted May 17, 2013 how do you diagnose MCAS ? i understand its complicated but are there tests for it ? besides tryptase blood test ? Quote Link to comment Share on other sites More sharing options...
Christy_D Posted May 17, 2013 Report Share Posted May 17, 2013 They also check PGD2 and Heparin, besides 24 hour urine tests. Even if those come back negative, you still might have MCAS because there are still so many things they don't have tests for yet. Dermagraphism(sp?) is another sign. When the doctor scratched my sons back, it left a red welt for approx. 15 minutes. Even if my son's tests came back negative, Dr Afrin was pretty sure he had MCAS based on the symptoms, the dermagraphism and history. His tests came back positive, so we had a definitive answer. Quote Link to comment Share on other sites More sharing options...
Achilles2323 Posted May 17, 2013 Author Report Share Posted May 17, 2013 Thank youWhats the name of the 24 hour urine test ? Quote Link to comment Share on other sites More sharing options...
corina Posted May 18, 2013 Report Share Posted May 18, 2013 Achilles, we have had lots of topics on this. You might want to try the search box on top of this page. Just type 24 hour urine test and you will find all the info you need. I don't know how sick you are but this just takes little effort, you can pick out the answers you need. Good luck! Quote Link to comment Share on other sites More sharing options...
Achilles2323 Posted May 18, 2013 Author Report Share Posted May 18, 2013 The only reason I make my own posts is because when I use the search bar it doesn't work....my phone is rewlly old ....All I need to know is the name of the test to diagnose mast cell Quote Link to comment Share on other sites More sharing options...
Christy_D Posted May 18, 2013 Report Share Posted May 18, 2013 24 Hour Urine N-Methyl-Histamine Test Quote Link to comment Share on other sites More sharing options...
Achilles2323 Posted May 18, 2013 Author Report Share Posted May 18, 2013 OK what I have gathered so far is1.24 Hour Urine N-Methyl-Histamine Test2.tryptase blood test Anymore that can help ? Quote Link to comment Share on other sites More sharing options...
Guest Alex Posted May 18, 2013 Report Share Posted May 18, 2013 Achilles,check out the latest newsletter on dinet's main page. It has a whole section on MCAS.Also if you do a typical web search for MCAS diagnosis criteria, you should find lots of helpful info.Alex Quote Link to comment Share on other sites More sharing options...
Achilles2323 Posted May 18, 2013 Author Report Share Posted May 18, 2013 Thank you tryptase in blood, N-methylhistamine in urine, heparin in blood, chromogranin A in blood, or other specific mast cell mediators such as Prostaglandin D2 or leukotrienesThat looks like the last test Will ask my doctor Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted May 18, 2013 Report Share Posted May 18, 2013 Please search the forum for answers... they are already there for nearly all of the questions you've asked in this topic and others. Quote Link to comment Share on other sites More sharing options...
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