shoegal Posted May 29, 2011 Report Share Posted May 29, 2011 I'd love to hear what others call low BP. When I tell me friends mine is 84/42 they freak, but I know it's not the lowest ever. 90/50 for me is fine, I'd prefer 100/60 but still some even call THAT lowLove to hear what others call low Quote Link to comment Share on other sites More sharing options...
icesktr189 Posted May 29, 2011 Report Share Posted May 29, 2011 I consider mine low its around 70/30,BUT only if it stays there. I am pretty sure everytime I stand it drops very low, but it goes back up when I lay down or move around. Quote Link to comment Share on other sites More sharing options...
louloutinks Posted May 29, 2011 Report Share Posted May 29, 2011 My lowest was 55/35 but my doc said that was not possible. I am usually about 89/55 but then I go up to 138/100. I vary so much day to day. Quote Link to comment Share on other sites More sharing options...
firewatcher Posted May 29, 2011 Report Share Posted May 29, 2011 My lowest was 50/"I can't hear anything..." as taken by the nurse at Vanderbilt. That was supine and dehydrated. Normal supine BP for me is 95/55. Quote Link to comment Share on other sites More sharing options...
misstraci Posted May 30, 2011 Report Share Posted May 30, 2011 Mine is probably a high low but its between 100/70 and 90/60. Quote Link to comment Share on other sites More sharing options...
kclynn Posted May 30, 2011 Report Share Posted May 30, 2011 I have only rarely gotten a low reading on my son (84/34). Now that we have his diagnosis and also the fact that the bp cuff causes him extreme pain I don't take it anymore. On the tilt table test he had a low reading similar to that also, but quite delayed.I have wondered about something. Since he has symptoms of low bp but I could only "catch" a low reading a couple of times, I feel like perhaps his bp dipped very low but by the time I tried to get a measurement it went back up but left him with symptoms of tunnel vision, blurry vision, weakness, dizziness, loss of balance... etc. which would last a very long time sometimes. It can take him quite awhile to recover from an episode. With the florinef and midodrine, this is much more rare (which maybe validates my theory?) Quote Link to comment Share on other sites More sharing options...
shoegal Posted May 30, 2011 Author Report Share Posted May 30, 2011 I consider mine low its around 70/30,BUT only if it stays there. I am pretty sure everytime I stand it drops very low, but it goes back up when I lay down or move around.what is it the rest of the time? Quote Link to comment Share on other sites More sharing options...
houswoea Posted May 30, 2011 Report Share Posted May 30, 2011 Well, I keep trying to donate blood but they won't let me donate if my bp is 90/50 or lower (which makes sense). Before midodrine kicks in, usually sitting down I'm around 70-80/40, but I don't notice unless I am at a doctor or the donation center or something. I know it's too low when the wooossshhhhh bbuzzzzzzzzzzzzzzzz sounds are in my ears. Then it's time to lay down! Or if I wake up on the ground. Then I know it was too low :-P Quote Link to comment Share on other sites More sharing options...
shoegal Posted May 30, 2011 Author Report Share Posted May 30, 2011 I am told 80/40 is fine by some of the docs, I have a midodrine script but not filled it yet, scared of it lowering my pulse. What is frustrating is I fell crappy at 80/40 but then when it's up to 100/60 I still feel crappy, so not sure if it's the low BP doing anything or not. oh and I can't donate blood, I've lived in Europe, they only want American blood here they tell me LOL Quote Link to comment Share on other sites More sharing options...
icesktr189 Posted May 30, 2011 Report Share Posted May 30, 2011 Oh my gosh donating blood?! Wow that is crazy! I think I would die! LolEven getting my blood pulled for test, I have to lay down or I pass out. Quote Link to comment Share on other sites More sharing options...
icesktr189 Posted May 30, 2011 Report Share Posted May 30, 2011 Normal bp before ssri was around 80/40. Now it can go to 100/60 Quote Link to comment Share on other sites More sharing options...
shoegal Posted May 30, 2011 Author Report Share Posted May 30, 2011 Normal bp before ssri was around 80/40. Now it can go to 100/60how did you feel at 80/40? did the SSRI give you other side effects? which one do you take? sorry bout the questions Quote Link to comment Share on other sites More sharing options...
houswoea Posted May 30, 2011 Report Share Posted May 30, 2011 Oh my gosh donating blood?! Wow that is crazy! I think I would die! LolEven getting my blood pulled for test, I have to lay down or I pass out. I'm not sure if I can yet, I always get disqualified in the screening round! But I figure if some people feel worse than we do, I should try to help them out because I can't even imagine feeling worse sometimes!I am told 80/40 is fine by some of the docs, I have a midodrine script but not filled it yet, scared of it lowering my pulse. What is frustrating is I feel crappy at 80/40 but then when it's up to 100/60 I still feel crappy, so not sure if it's the low BP doing anything or not.Really? Midodrine did nothing to lower my pulse, though I wish it had! Usually the way I feel relates to how fast my HR is rather than my blood pressure. SSRI's made things way worse for me. I vote you just go ahead and try things, and if isn't working, you can always stop and try something new! Quote Link to comment Share on other sites More sharing options...
shoegal Posted May 30, 2011 Author Report Share Posted May 30, 2011 is it normal to have 77/48 one min than 10 mins later 90/50? Maybe this is normal but people normally don't check their BP 100 times a day? LOL Quote Link to comment Share on other sites More sharing options...
icesktr189 Posted May 30, 2011 Report Share Posted May 30, 2011 Oh yes it varies min by min. But those numbers are low so midodrine should help. I hate taking new meds because I have a phobia if them, but midodrine is so short acting, that if you absolutely hate it it will be out of your system very fast. Just start at 2.5 mgs and see how you do! Quote Link to comment Share on other sites More sharing options...
shoegal Posted May 30, 2011 Author Report Share Posted May 30, 2011 Oh yes it varies min by min. But those numbers are low so midodrine should help. I hate taking new meds because I have a phobia if them, but midodrine is so short acting, that if you absolutely hate it it will be out of your system very fast. Just start at 2.5 mgs and see how you do!I have the same BP's 24/7 so how would it work at night when not taking the med? Quote Link to comment Share on other sites More sharing options...
lmt033167 Posted May 31, 2011 Report Share Posted May 31, 2011 From age 9 - 44, my bp "normal" was 90/60 with feelings of lightheadedness, fainting, fatigue etc. My EP prescribed Toprol and it kept dropping so they sent me to the ER and said they had never seen a person with bp as low as mine who was sitting up and fine - they gave me a shot (can't remember what it was) hooked me up to IV's and pumped me full of fluids which I could float a boat with lol even with the shot; my bp stayed at 70/40 and hr of 40 for 11 hours then they said it was just my whacky system and felt I was stabilized enough to go home with a warning of no more Toprol.During my TTT my bp plummeted to 0 and I had no palpable pulse; which I'm told is rare but not what caused it - I think it's due to Nitro; and still seraching for answers Quote Link to comment Share on other sites More sharing options...
icesktr189 Posted May 31, 2011 Report Share Posted May 31, 2011 No midodrine only works for at most 4 hours. Yu should not take it at nihht because Of suspine hypertenion. I have taken a fourth dose when I knew I would be up late, but I dont sleep on the stuff. Quote Link to comment Share on other sites More sharing options...
icesktr189 Posted May 31, 2011 Report Share Posted May 31, 2011 If you need something for nights, florinef would.be the next option. But start one at a time, and.remember florinef takes awhile to work. I couldnt tolerate it after six months due to migraines. Quote Link to comment Share on other sites More sharing options...
shoegal Posted May 31, 2011 Author Report Share Posted May 31, 2011 whats confusing is I feel crappy at 80/45 but feel crappy at 100/60 (my old normal BP) So maybe my BP isn't what is causing me to feel awful? Quote Link to comment Share on other sites More sharing options...
songcanary Posted May 31, 2011 Report Share Posted May 31, 2011 Hi Shoegal,I have the same problem. BP can be 100/70 or 89/60 and there is no correlation with symptoms, I can't make sense of it. I am wondering if it's Midodrine time for me too. But like you say, is it the BP that is making us feel sick or something else? It seems like such a simple question to me and yet, no real answer. Quote Link to comment Share on other sites More sharing options...
Magnesiumgirl Posted May 31, 2011 Report Share Posted May 31, 2011 I consider low to be 80/50; however, my blood pressure has droped waaay lower. I used to get scared when I would see the nurses face, but after awhile you learn to laugh it off. After all, I feel fine! Quote Link to comment Share on other sites More sharing options...
shoegal Posted May 31, 2011 Author Report Share Posted May 31, 2011 Hi Shoegal,I have the same problem. BP can be 100/70 or 89/60 and there is no correlation with symptoms, I can't make sense of it. I am wondering if it's Midodrine time for me too. But like you say, is it the BP that is making us feel sick or something else? It seems like such a simple question to me and yet, no real answer.I hate taking pills and scared to try it, stupid I know. But I do wonder as well given how small I am if lower BP is less of an issueI consider low to be 80/50; however, my blood pressure has droped waaay lower. I used to get scared when I would see the nurses face, but after awhile you learn to laugh it off. After all, I feel fine! you go lower?? do tell! How low before you'd ring 911? You feel fine with it low? Quote Link to comment Share on other sites More sharing options...
Magnesiumgirl Posted May 31, 2011 Report Share Posted May 31, 2011 I've been at the doctor's office and they've gotten it in the low 70's high 60's, so nothing compared to the other peole on here! I can hit 75 and feel fine, but other times it will give me trouble at 90/something... *sigh* Just another thing I don't understand about us dysautonomics...Sorry, I don't know why I said waaay lower. That was silly of me. Quote Link to comment Share on other sites More sharing options...
shoegal Posted May 31, 2011 Author Report Share Posted May 31, 2011 I've been at the doctor's office and they've gotten it in the low 70's high 60's, so nothing compared to the other peole on here! I can hit 75 and feel fine, but other times it will give me trouble at 90/something... *sigh* Just another thing I don't understand about us dysautonomics...Sorry, I don't know why I said waaay lower. That was silly of me.do you treat it? are you small out of interest? I'm only little 4"10 Quote Link to comment Share on other sites More sharing options...
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