bensman Posted May 17, 2011 Report Share Posted May 17, 2011 Hi, I am "new" here. Actually, I have vigorously been reading this site/forum since I was diagnosed with POTS in February after 8 years of illness. I have gained so much information here and am trying to sort out the best plan for me.I have been receiving IV saline for about 8 weeks and had a port put in last week because they could never get my line in without multiple sticks. I have a couple of questions for those of you that get iv saline:1. How much do you get at one time (in liters)?2. What rate do they drip it at (how many hours)?3. Where do you receive your treatment? I really appreciate all of the knowledge that all of you possess! Quote Link to comment Share on other sites More sharing options...
Sarah4444 Posted May 17, 2011 Report Share Posted May 17, 2011 I don't get IV saline (although having some after my TTT sure seemed to help), so I can't answer your question, but I just wanted to say hi and welcome. Quote Link to comment Share on other sites More sharing options...
Magnesiumgirl Posted May 17, 2011 Report Share Posted May 17, 2011 Same as Sarah4. I don't have any answers for you, but welcome to the forum. Good luck. Quote Link to comment Share on other sites More sharing options...
Rachel Posted May 18, 2011 Report Share Posted May 18, 2011 Hello and welcome! I hope that you find the forum to be a helpful and friendly place.I get 1 liter of saline three times a week. It is infused over 2 1/2 hours. A nurse comes to my home to start a new peripheral IV each time.Rachel Quote Link to comment Share on other sites More sharing options...
houswoea Posted May 18, 2011 Report Share Posted May 18, 2011 I get one liter over one hour at a clinic. Quote Link to comment Share on other sites More sharing options...
lgtaylor100 Posted May 18, 2011 Report Share Posted May 18, 2011 How was it determined that you need the saline IV. I think it is a wonderful idea. Every time I have gotten a saline iv I have felt better. How did you make it happen? Quote Link to comment Share on other sites More sharing options...
misstraci Posted May 18, 2011 Report Share Posted May 18, 2011 Hi, I'm new too, welcome and hope you feel better!!! Quote Link to comment Share on other sites More sharing options...
bensman Posted May 18, 2011 Author Report Share Posted May 18, 2011 Thanks for the warm welcome.lgail - I was referred to the hematologist for habitual low white blood cell count. I was explaining my POTS to the doc, and he didn't look at me like I was crazy. So, I asked him if he'd be willing to give me some iv saline. He agreed, but admitted he's a POTS novice and doesn't really know the amount, rate, etc. Rachel - Can you tell me what type of saline you are receiving? Right now I am just getting saline with sodium. But, when I got my port I was quizzing the RN who prepped me and she said the pre-surgery saline has all of the electrolytes in it (more like a Gatorade mixture). When I went for my last iv, I asked the nurse if they were able to add other stuff in, and she said they could add anything (potassium, magnesium, calcium, etc.) that the doc orders. I go to see him next Tuesday, and was hoping to tell him the best mixture for Potsies. Thanks so much! Quote Link to comment Share on other sites More sharing options...
Rachel Posted May 19, 2011 Report Share Posted May 19, 2011 I get normal saline. I get electrolytes in my Gatorade each morning. I also take magnesium and calcium supplements each day. At this point I don't really need the electrolytes in my saline. I just need the extra fluid volume.Rachel Quote Link to comment Share on other sites More sharing options...
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