gertie Posted September 16, 2009 Report Share Posted September 16, 2009 Does anyone else experience this? Is it part of dysautonomia? Are there any meds to stop it? Neurontin was prescribed to me for neuropathy but it is causing this to be worse. I apologize for posting this again but I find no info so far that has helped. Thanks. Quote Link to comment Share on other sites More sharing options...
EarthMother Posted September 17, 2009 Report Share Posted September 17, 2009 I use to get BMS (burning mouth syndrome) often there is a lot on the web about it. Some say dentists are good people to try.Also hormones seem to play a role, and as I am perimenapausal that probably contributes.I read one article that suggested BMS was related to "bracing" or tongue thrusting. in my case, that seemed plausible -- so I began to focus on relaxing my jaw, lips and tongue. I also tried the diet tips I found online.Not sure what eventually worked ... but its probably been 6 months or more and it hasn't come back.Good luck finding something that works for you. Quote Link to comment Share on other sites More sharing options...
janiedelite Posted September 17, 2009 Report Share Posted September 17, 2009 Hey, please let me know if you get any help because I have this too! Last summer, I started to get burning in my feet which spread upward within a week to my hands, then face, then mouth, then entire body. Oddly enough, one easy treatment for the burning mouth for me is benadryl. Benadryl doesn't help the burning anywhere else, but I've read that excess histamine can cause odd taste sensations. My mouth tastes like metal. I've brought this up to my PCP, neurologist locally, and the neuro at Mayo and NO ONE HAS ANY HELP! Also, I've tried neurontin and lyrica which helped with the peripheral burning but not my mouth and throat. I told my PCP it's like I've just drank a scalding cup of coffee, all the time.The Mayo neurologist was stymied when I brought it up and I think he just attributed it to neuropathy. I notice that during times of excessive adrenaline release (I have a mildly hyperadrenergic response to orthostatic stressors), the burning gets worse and benadryl helps although it takes over an hour to kick in. Now, often I take zyrtec for my hayfever but this doesn't help my burning mouth at all. Wierd!!! Quote Link to comment Share on other sites More sharing options...
Janey Posted September 17, 2009 Report Share Posted September 17, 2009 I get tingling mouth and throat which becomes a REAL problem for me because it makes me gag. Does this sound similar? Or is your burning preceded by tingling? Janey Quote Link to comment Share on other sites More sharing options...
janiedelite Posted September 17, 2009 Report Share Posted September 17, 2009 No, I don't have any tingling. The burning is constant, just worsens under times of stress or talking. Quote Link to comment Share on other sites More sharing options...
toddm1960 Posted September 17, 2009 Report Share Posted September 17, 2009 I have the tingling burning lips and mouth, also the metal taste. I started on 400mg twice a day of B1 and haven't had it since. Now I hate to say anything is a direct relationship for us with ANS problems, but this has seemed to work for me for the past 4 months. Crossing my fingers it's stays this way. Good luck, and let know if you find something that works for you. Quote Link to comment Share on other sites More sharing options...
juliegee Posted September 17, 2009 Report Share Posted September 17, 2009 Alicia,My Mom had this & found relief when she switched away from minty or strong mouthwashes and toothpastes. She switched to gentle herbals & the problem went away. Here is a link to more info. There are many different causes and treatments:http://www.mayoclinic.com/health/burning-m...yndrome/DS00462All the best-Julie Quote Link to comment Share on other sites More sharing options...
gertie Posted September 18, 2009 Author Report Share Posted September 18, 2009 Thanks everyone. I've tried no toothpaste & leaving off foods but this seems to be brought on by certain med's & supplements. Quote Link to comment Share on other sites More sharing options...
mkoven Posted September 18, 2009 Report Share Posted September 18, 2009 maybe not relevant, but I get tingling in my mouth and throat from cranial instability. It happens when I move my head in certain ways. Quote Link to comment Share on other sites More sharing options...
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