Janey Posted August 17, 2009 Report Share Posted August 17, 2009 I'm just checking if these are normal symptoms of POTS, I haven't discussed them with my POTS specialist yet. When I'm having a POTS and Gastroparesis flare-up that big artery in my stomach really throbs and the skin on my torso goes up and down with it. Everything feels really tight and when I put my fingers on it, it feels stronger than I've felt an artery ever before. But right now, when I put my fingers on it, I can hardly feel it and I feel okayish at the moment (never 100% of course!) Do you think this is a bad thing or just another symptom of POTS?When I lie down I also feel the blood pumping out of my legs. Does anyone get this? It feels like it's one of my big thigh muscles twitching, but it's definitely not, it's a strong pulse in my legs pushing blood back up into my body once I'm horizontal. Do you all get this too? Janey Quote Link to comment Share on other sites More sharing options...
arizona girl Posted August 17, 2009 Report Share Posted August 17, 2009 I'm just checking if these are normal symptoms of POTS, I haven't discussed them with my POTS specialist yet. When I'm having a POTS and Gastroparesis flare-up that big artery in my stomach really throbs and the skin on my torso goes up and down with it. Everything feels really tight and when I put my fingers on it, it feels stronger than I've felt an artery ever before. But right now, when I put my fingers on it, I can hardly feel it and I feel okayish at the moment (never 100% of course!) Do you think this is a bad thing or just another symptom of POTS?When I lie down I also feel the blood pumping out of my legs. Does anyone get this? It feels like it's one of my big thigh muscles twitching, but it's definitely not, it's a strong pulse in my legs pushing blood back up into my body once I'm horizontal. Do you all get this too? JaneyAfter I've been on my feet a lot, or taken a bath my body pulses like that too! It calms down after I've laid down for a while. Quote Link to comment Share on other sites More sharing options...
erik Posted August 17, 2009 Report Share Posted August 17, 2009 I have a very mild version of similar thing (though at times I can "see" it)... as I searched for matches the closest I came was Aortic Aneurysm:http://www.rush.edu/rumc/page-1160429744171.htmlhttp://en.wikipedia.org/wiki/Aortic_aneurysmI am only seeing this as a "partial" or "remote" match for myself. Not sure how well it matches your situation but it is worth investigating. Basically, it goes undetected often enough. An ultrasound seems to be the way to check for it.I'm sure there are other such things, or perhaps some totally benign explanations... or just "general blood flow" issues! But this is something that can be potentially serious and easy to miss so it seems worth a close look to me.---------------------------------------------------------------------This EDS related post seems relevant. Also, I think this condition is also associated with "throwing clots" such as to the lungs (pulmonary embolism). I had an unexplained Hemoptysis (coughing of blood) so I keep this in the back of my mind as a remote possibility:http://dinet.ipbhost.com/index.php?showtopic=13160 Quote Link to comment Share on other sites More sharing options...
carinara Posted August 18, 2009 Report Share Posted August 18, 2009 as soon as i lay down flat on my back i can feel my heart beating all over the place, and i can see it also because my stomach is jumping up and down.My cardiologist told me a few years ago, that i should try to sleep in a more upper position. I know that he tells that all his other patients with all kinds of heart and BP probems too. Ever since that day i sleep more in a sitting than in a laying position. I bought myself a special pillow which i put in my bed. I dont remember the last time when i slept flat on my back. I must say, that it does make a difference tome. That way i can honestly say, i get less tachy and i can feel my heartbeat less. Like i said, i never lay flat on my back anymore. Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted August 18, 2009 Report Share Posted August 18, 2009 I dont know if this is related but you can see my pulse in places and feel it anywhere on my body. Quote Link to comment Share on other sites More sharing options...
potsgirl Posted August 18, 2009 Report Share Posted August 18, 2009 I'm the same as Ramakentesh, you can see my pulse and feel it at basically any point on my body. I'm a little thin, though, and I suppose that might have something to do with it. Quote Link to comment Share on other sites More sharing options...
erik Posted August 28, 2009 Report Share Posted August 28, 2009 I edited my prior post above and am throwing in this "cross-link" here too. It is a difficult issue to balance out since it's an asymptomatic condition most of the time and we are a class of patients living on the edge of hypochondriac accusation. Diagnosis can be aided by having a "baseline" measure done, but I don't know how one argues for this baseline measure since there are no symptoms yet! Anyway, for EDS it sure seems like it should be standard practice:http://dinet.ipbhost.com/index.php?showtopic=13160 Quote Link to comment Share on other sites More sharing options...
Janey Posted August 28, 2009 Author Report Share Posted August 28, 2009 Thanks v much for the cross link Erik.. it is rather scary about the aorta thing, though hate to feel like a hypochondriac. i think I'll ask my EDS specialist about it..Janey Quote Link to comment Share on other sites More sharing options...
iheartcats Posted August 29, 2009 Report Share Posted August 29, 2009 I can feel mine pounding sometimes when I lie down. It's unnerving at times, but seems to vary from day to day. Quote Link to comment Share on other sites More sharing options...
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