ken870 Posted March 29, 2009 Report Share Posted March 29, 2009 i have just got home from vanderbilt and doctor roberston and biggaggoni diagnosed me with pots,orthostatic intolerance, chronic fatigue syndrome,autonomic neuropathy and fibromyalgia and the medicines they gave me was lyrica and propranolol for my fibromyalgia and pots and to all that is wondering if it is a good place to go i am here to tell you that you could not find a better place to go because the doctors there and the nurses plus bonnie back are some of the most special people that you would ever want to meet and the time i was there to the time i left they was right there asking all the time what they could do for me and how they could help me feel better and one other thing doctor roberston said was that pots had me bedridden and to get back into shape he wanted me to change my lifestyle by trying to move as much as i can each day and possibly in a year or two that i would not be bedridden like i am now. Quote Link to comment Share on other sites More sharing options...
firewatcher Posted March 29, 2009 Report Share Posted March 29, 2009 WOW! Congratulations! you made it through!I hope the meds help and you are on your feet soon!Jennifer Quote Link to comment Share on other sites More sharing options...
juliegee Posted March 29, 2009 Report Share Posted March 29, 2009 What a blessing t have a DX. I hope you're on your way to feeling better with your new meds.Julie Quote Link to comment Share on other sites More sharing options...
futurehope Posted March 30, 2009 Report Share Posted March 30, 2009 i have just got home from vanderbilt and doctor roberston and biggaggoni diagnosed me with pots,orthostatic intolerance, chronic fatigue syndrome,autonomic neuropathy and fibromyalgia and the medicines they gave me was lyrica and propranolol for my fibromyalgia and pots and to all that is wondering if it is a good place to go i am here to tell you that you could not find a better place to go because the doctors there and the nurses plus bonnie back are some of the most special people that you would ever want to meet and the time i was there to the time i left they was right there asking all the time what they could do for me and how they could help me feel better and one other thing doctor roberston said was that pots had me bedridden and to get back into shape he wanted me to change my lifestyle by trying to move as much as i can each day and possibly in a year or two that i would not be bedridden like i am now.I'm really happy that you had a good experience. I have a difficult time reading your account, though, as there are no capital letters, sentences, periods or commas or spaces. Is this how you write when you text message? I don't text so I wouldn't know. Quote Link to comment Share on other sites More sharing options...
janiedelite Posted March 30, 2009 Report Share Posted March 30, 2009 That's great! You've been so sick and I'm glad you have some hope. I hope you are able to start getting stronger. It has helped my symptoms somewhat to work on getting my lower body stronger. I hope the meds help your heartrate and your pain! Lyrica helped my pain tons, I just wish it didn't make me so constipated. But my mom takes it without any problems except being "fuzzy headed." Would we know the difference though with all our brain fog??? Quote Link to comment Share on other sites More sharing options...
ken870 Posted April 1, 2009 Author Report Share Posted April 1, 2009 That's great! You've been so sick and I'm glad you have some hope. I hope you are able to start getting stronger. It has helped my symptoms somewhat to work on getting my lower body stronger. I hope the meds help your heartrate and your pain! Lyrica helped my pain tons, I just wish it didn't make me so constipated. But my mom takes it without any problems except being "fuzzy headed." Would we know the difference though with all our brain fog??? are you still taking lyrica and is it still helping you also they gave me propranolol for pots and somedody told me propranolol is elavil which they also use for fibromyalgia is that true. Quote Link to comment Share on other sites More sharing options...
ajw4790 Posted April 2, 2009 Report Share Posted April 2, 2009 Hi,All the meds you listed are different. Whoever said that was confused. What you were given was a beta blocker. Beta blockers most common use for people outside the POTS world is high blood pressure. Lyrica is very different and can be used for chronic pain, fibromyalgia etc. Elavil is an antidepressant also known as amitriptyiline (sp?) and can be used to treat fibromyalgia too. Quote Link to comment Share on other sites More sharing options...
Rachel Posted April 2, 2009 Report Share Posted April 2, 2009 I'm glad that things went well for you and that you were able to get a firm diagnosis. I hope that with treatment you will see improvements in your symptoms.Rachel Quote Link to comment Share on other sites More sharing options...
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