zoe ashcraft Posted February 21, 2009 Report Share Posted February 21, 2009 Hi all, I'm new at figuring anything about my POTS out and it seems at this point near to impossible to separate the symptoms of POTS, Tethered Cord, Cranio-cervical Instability and Non- epileptic seizure conditions apart. So, for starters, I'd like to ask you all what happens to you or does anything? when you have your blood pressure taken? I know for me it's caused an internal pressure to rise that I don't know how to describe and often caused me to have stroke like symptoms or severe spasming. Last week, I asked in my doctor's appointment if I could decline having my blood pressure taken, was told no and when they took it I had what they called a grand mal seizure- although I was still conscious most of the time- and finally was able to instruct them (my husband being present understood my lame speech) to get my cervical traction unit from the car- which calmed down my system completely - along with their lovely oxygen* Oh, I do love oxygen* Anyway, searching for clues,from somewhere over the rainbow! zoe more about me at www.CarePages.com (prismed) Quote Link to comment Share on other sites More sharing options...
mjan Posted February 21, 2009 Report Share Posted February 21, 2009 WOW.. no I have not heard of this. So sorry. A grand mal and you were conscious?? I never heard of that at all..but my hubby had seizures and never could remember them. What does the cervical traction look like? What does it do for you?take care..whew..Warmly, Jzn Quote Link to comment Share on other sites More sharing options...
zoe ashcraft Posted February 22, 2009 Author Report Share Posted February 22, 2009 hi, well, maybe it's not a POTS thing~ I just thought maybe since it had to do with blood pressure and all- anyway. the cervical traction unit is a blow-up device that stretches the cervical spine- (pulls my head away from my body)- and relieves any brain stem compression going on. Frequently- as I had this day- taken a long car ride- the last road was somewhat bumpy and even though I was wearing my full brace- from waist to neck- to hold me stationary- it was too bumpy, probably added to the problem. I have just recently started to carry it with me as unfortunately- these things are happening. argh. usually ppl are not conscious for a Grand Mal Seizure. I go in and out, but am mostly conscious- therefore, as USual, never am the norm. (you know the feeling?) I'm guessing now my seizures got worse cuz my doctor took me off the Methadone too fast for someone with a seizure disorder. And to fix it he put me ON too FAST too- ach- (uneducated doctors, what shAll we do?) learn for ourselves. it sure does get old though. anyway, thanks for responding even though you don't share the response with having your blood pressure taken. Cheers* from over the rainbow zoe Quote Link to comment Share on other sites More sharing options...
pat57 Posted February 23, 2009 Report Share Posted February 23, 2009 Zoe, I've have seizures that look like grand mal, and I thought I was conscious every time. But with the two that I got reports from bystanders my recall would have been 3 - 5 seconds when it lasted 2- 3 minutes. I thought the episode was only a few seconds.not so Quote Link to comment Share on other sites More sharing options...
zoe ashcraft Posted February 24, 2009 Author Report Share Posted February 24, 2009 hi, thanks for replying are these seizure events something you attribute to your POTS or something else or a combo? ?? What brought them on? thanks again, keep lookin' for the rainbow,and in the meantimedanCe in the raIn.zoe Quote Link to comment Share on other sites More sharing options...
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