firewatcher Posted July 9, 2008 Report Share Posted July 9, 2008 I have finally joined and would like to introduce myself:I am an extremely nerdy mother of two boys, 9 and 6. I think that I have always had POTS since I could never run and always gotten dizzy if I stood up too quickly. I was MIS-diagnosed with exercise induced asthma 12 years ago when I went in to the Dr. after nearly passing out while attempting to jog with my husband. I had always been told that I was lazy and out of shape, and the Dr. said "I don't even have to test you...you have asthma!" Wrong! I had an stress ECG done several months ago and it was determined that my heart rate went up to 180 bpm with a brisk walk, it's a little hard to breathe when your heart is beating that fast.I have never slept well, so I went to a sleep Dr. who is absolutely positive that I have DSPS (Delayed Sleep Phase Syndrome) a genetic screw-up of my circadian clock. I don't want to go to sleep and cannot actually go to sleep until my body says it is "night" usually after 2am, and getting up at a "decent" hour is torture. We tried a lot of different things in an effort to reset my body clock and all of this culminated in quite the "Crash." I began hallucinating (actually in the dr.'s office), developed a tremor, was unable to carry on a conversation, left the groceries in the car because I forgot that I had gone there, and of course the migraines! My primary Dr. did minimal testing and sent me to a psychiatrist. Fortunately, a good one...he looked over all my symptoms and actually called a neurologist to make me an appointment. Then the ball started rolling, they found autonomic neuropathy, orthostatic intolerance, and central diabetes insipidus (the jury is still out on that one.) My NEW primary Dr. got me in at Vanderbilt (in November) and is insisting that I get completely tested for this DI thing.My current hobbies are neuroendocrinology and orthostatic intolerance research, and occasional gardening when I feel up to it. I am a successful, free-lance artist (at least when I am medicated and don't have the tremor.) I also have a wonderfully supportive husband and family. I can give you all the stats and info on the 4 types of diabetes insipidus, but cannot tell you if I have it, or why it is not really there in POTS. So, hi Y'all, it is very nice to meet you! If you need me, I'm swinging and doing acrobatics at the end of my rope!Jennifer Quote Link to comment Share on other sites More sharing options...
pat57 Posted July 9, 2008 Report Share Posted July 9, 2008 Hi Jennifer,Welcome. Good luck at Vanderbilt! Quote Link to comment Share on other sites More sharing options...
Maxine Posted July 9, 2008 Report Share Posted July 9, 2008 Welcome Jennifer! You should find some pretty suppportive people on this site-- Maxine :0) -------doing a balancing act on my rope........LOL Quote Link to comment Share on other sites More sharing options...
Ernie Posted July 9, 2008 Report Share Posted July 9, 2008 Hi,Welcome aboard. Quote Link to comment Share on other sites More sharing options...
Rachel Posted July 10, 2008 Report Share Posted July 10, 2008 Hello and welcome!Glad you joined us. Rachel Quote Link to comment Share on other sites More sharing options...
masumeh Posted July 11, 2008 Report Share Posted July 11, 2008 Hi! And welcome to the forum I hope you find the support you're looking for here Quote Link to comment Share on other sites More sharing options...
lalalisa Posted July 11, 2008 Report Share Posted July 11, 2008 Jennifer,Hello! Welcome! We are glad you are here and hope this forum is helpful for you. Take care, Lisa Quote Link to comment Share on other sites More sharing options...
ajw4790 Posted July 11, 2008 Report Share Posted July 11, 2008 Hi! Welcome!I too pretty much have the same type of sleep problem, still undiagnosed, and ever changing due to meds. I too have a tremor, but it is an Essential Tremor, so it is probably different than for you.I hope that you get more answers soon! Quote Link to comment Share on other sites More sharing options...
Megan Posted July 11, 2008 Report Share Posted July 11, 2008 Welcome to the forum!Meg Quote Link to comment Share on other sites More sharing options...
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