Juls Posted February 29, 2016 Report Share Posted February 29, 2016 Can someone please give me a good dysautonomic disorder physician name in NJ? Nearby Philadelphia and NewYork city are also okay. I am diagonized with CFS and IBS, but I think that it is Dysautonomic related. Please help. Thanks. Quote Link to comment Share on other sites More sharing options...
headhunter Posted February 29, 2016 Report Share Posted February 29, 2016 There is a physician list on the site---ill link later. I go all the way to Ohio to see my doc. I know there is a couple in NYC....I am from south jersey....Hope you feel better! Quote Link to comment Share on other sites More sharing options...
SarahA33 Posted February 29, 2016 Report Share Posted February 29, 2016 Hi juls! Welcome Here's the link to our physicians list: http://dinet.org/index.php/physician-listNick Tullo is in NJ, he treats general dysautonomia and syncope. His contact info is in the list above. The following doctors are from the American Autonomic Society's Website. DINET doesn't have any affiliation with these physician's, and I'd suggest calling their offices to see if they treat your specific condition, how many patients they've treated with it, etc. Best of luck on your search. Let us know if we can help further! -SarahPennsylvania -Wishwa Kapoor, M.D.Suite 933 MUH, 200 Lothrop StreetPittsburgh, PA 15213USAPhone: 412-692-4821Fax: 412-692-4825E-mail: wnk@med.pitt.eduOrthostatic Intolerance (POTS, mitral valve prolapse)Syncope, Neurally Mediated SyncopeRichard Malamut, M.D.Crozer-Chester Medical CenterAmbulatory Care PavillionSuite 533Chester, PA 19013USAPhone: 610-874-1184Fax: 610-874-4258Diabetic neuropathyNeuropathic PainNew York - Dr. Felicia B. AxelrodNew York University Medical Center530 First Avenue, suite 9QNew York, NY 10016USAPhone: 212-263-7225Fax: 212-263-7041E-mail: Felicia.Axelrod@popmail.med.nyu.eduFamilial dysautonomia (FD)Hereditary sensory and autonomic neuropathyOther pediatric patients with congenital autonomic disordersLudmilla Bronfin, M.D.650 First Avenue, 7th FloorNew York, NY 10016USAPhone: 212-532-6298Fax: 212-545-8530e-mail: lumsig@aol.comPostural Tachycardia Syndrome (POTS)Autonomic NeuropathyOrthostatic IntoleranceHyperhidrosisHoracio Kaufmann, M.D.Dpt. of Neurology,NYU School of Medicine530 First Avenue, Suite 9QNew York, New York 10016, USAhoracio.kaufmann@med.nyu.eduMultiple System Atrophy (Shy-Drager Syndrome)Autonomic Failure (PAF, secondary autonomic failures)Orthostatic Intolerance (POTS, mitral valve prolapse)Other autonomic disordersLindsey Lee Lair, M.D.35 East 35 St, Suite 202New York, NY 10016USAPhone: 212-683-4640Fax: 212-671-1466E-mail: contact@autonomicmd.comMultiple System AtrophyPure Autonomic FailureOrthostatic Intolerance, POTSNeurally Mediated SyncopeHyperhidrosisFrank Mazzola, M.D., F.A.C.C.Clinical Assistant ProfessorState University of New York at Stony BrookNorth Suffolk Cardiology Associates2500-1 Nesconset HighwayStony Brook, NY 11790USAPhone: 516-689-7700Fax: 516-689-7720E-mail: fmazz@compuserve.comMultiple System Atrophy (Shy-Drager Syndrome)Autonomic Failure, (PAF, secondary autonomic failures)Orthostatic Intolerance (POTS, mitral valve prolapse)Neurocardiogenic SyncopeDevelopmental DysautonomiaChronic Fatigue SyndromeEmilio Oribe, M.D., F.A.C.P.162 East 78th StreetNew York, NY 10075USAPhone: 212-794-2281Fax: 212-517-5991E-mail: exoribe@nyp.orgWebsite: www.nynapc.comSyncope/FaintingOrthostatic Intolerance/POTSMultiple System AtrophyParkinson’s DiseaseAutonomic FailureMark S. Pecker, M.D.Hypertension DivisionNew York Presbyterian Hospital-Cornell Campus525 East 68th StreetNew York, NY 10021USAPhone: 212-746-2210/2124Fax: 212-746-8451E-mail: mpecker@mail.med.cornell.eduMultiple System Atrophy (Shy-Drager Syndrome)Autonomic Faliure (PAF, secondary autonomic failures)Orthostatic Intolerance (POTS, mitral valve prolapse)Other autonomic disorders (Circulatory)Rohan G. Perera, M.D.Division of CardiologySt. Luke's -Roosevelt Hospital1111 Amsterdam AvenueNew York, NY 10025USAPhone: 212-523-4007Fax: 212-523-3915E-mail: pererarohan@hotmail.comMultiple System Atrophy (Shy-Drager Syndrome)Autonomic Failure (PAF, secondary autonomic failures)Orthostatic Intolerance (POTS, mitral valve prolapse)Other autonomic disordersIndu Taneja, MBBS, Ph.D.19 Bradhurst, Suite 3050 NorthHawthorne, NY 10532USAPhone: 914-593-8885Fax: 914-593-8890E-mail: indu_taneja@hotmail.comOrthostatic IntoleranceNeurally Mediated SyncopeLouis H. Weimer, M.D.Neurological Institute of New York710 W. 168th StreetNew York, NY 10032USAPhone: 212-305-1330Fax: 212-305-5396E-mail: lhw1@columbia.eduMultiple System AtrophyPure Autonomic FailureOrthostatic IntoleranceAutonomic NeuropathyOther Autonomic Disorders Quote Link to comment Share on other sites More sharing options...
Juls Posted February 29, 2016 Author Report Share Posted February 29, 2016 Thank you very very much! Quote Link to comment Share on other sites More sharing options...
Sylvie33 Posted February 29, 2016 Report Share Posted February 29, 2016 Hi,I've found this NYC list to be dated. Moderators (and the poster) may PM for updates. Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted March 1, 2016 Report Share Posted March 1, 2016 Hi Sylvie Please take a look at this pinned topic regarding this list: http://forums.dinet.org/index.php?/topic/26721-submit-names-for-physician-list/ If you want to suggest updates please send an e-mail to PhysicianList@dinet.org. Thanks! Quote Link to comment Share on other sites More sharing options...
Sylvie33 Posted March 1, 2016 Report Share Posted March 1, 2016 Will do! Quote Link to comment Share on other sites More sharing options...
RichGotsPots Posted May 9, 2016 Report Share Posted May 9, 2016 On 2/29/2016 at 11:19 AM, MomtoGiuliana said: Hi Sylvie Please take a look at this pinned topic regarding this list: http://forums.dinet.org/index.php?/topic/26721-submit-names-for-physician-list/ If you want to suggest updates please send an e-mail to PhysicianList@dinet.org. Thanks! I run a NY & NJ POTS group and have heard some negative comments about some of the doctors mentioned. If there some way we could get a rating system in place for them or reviewss? Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted May 11, 2016 Report Share Posted May 11, 2016 Here are the rules (below) regarding posting information about physicians on the DINET Forums. We have no rating/review system here. Part of DINET's mission is to educate the medical community on the Autonomic Nervous System, and many physicians worldwide reach out to our website as a resource. Many websites elsewhere allow exchanges of patient reviews of doctors. For liability reasons, DINET does not allow members to post specific names of doctors, locations, hospitals, etc. on the forum when elaborating on a negative experience. However, forum members can state they had a negative experience with a doctor, or share specific negative comments about an un-named doctor, on our forum. We are here to support our members and help them find the resources and help they need. If you have doctor suggestions you'd like to offer, please send an e-mail to PhysicianList@dinet.org. DINET does not endorse specific physicians on this list. Thank You! Doctors and Hospitals You agree to refrain from making disparaging remarks about hospitals or medical professionals on this forum and to refrain from naming doctors or hospitals when elaborating on negative experiences. Clarifications: It is fine to make a general statement, such as "I had a negative experience with Dr. ____ ," however, per forum rules, statements naming a particular doctor or hospital cannot be defamatory in nature. Defamatory: "1. Harmful and often (but not necessarily) untrue; tending to discredit or malign." You may elaborate on negative doctor or hospital visits as long as the particular doctor or hospital is not named, and therefore not defamed. Quote Link to comment Share on other sites More sharing options...
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