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What Is Dysautonomia?
Dysautonomia means dysregulation of the autonomic nervous system. Dysregulation of the autonomic nervous system can produce the apparent malfunction of the organs it regulates. For this reason, dysautonomia patients often present with numerous, seemingly unrelated maladies.
Symptoms are wide ranging and can include problems with the regulation of heart rate, blood pressure, body temperature and perspiration. Other symptoms include fatigue, lightheadedness, feeling faint or passing out (syncope), weakness and cognitive impairment.
Autonomic dysfunction can occur as a secondary condition of another disease process, like diabetes, or as a primary disorder where the autonomic nervous system is the only system impacted. These conditions are often misdiagnosed.
Over one million Americans are impacted with a primary autonomic system disorder. The more common forms of these conditions include Postural Orthostatic Tachycardia Syndrome (POTS) / Orthostatic Intolerance (OI), Neurocardiogenic Syncope (NCS), Pure Autonomic Failure (PAF) and Multiple Systems Atrophy (MSA)
DINET provides information and personal stories on several types of dysautonomia. You may download our informational brochure HERE.
We publish our newsletter multiple times throughout the year in spring, summer, fall, and winter.
Please see our full issues in pdf format.
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In The News
Kelly found our community the way many of you have, while hunting for a diagnosis and good information to help her young daughter in her journey with dysautoniomia. Kelly also comes to us with a great deal of professional experience interfacing with medical professionals. Please join me in warmly welcoming our first Executive Director, Kelly A. Tucker!
Warmly, Nina C. Wilde, President of the Board of Directors of the Dysautonomia Information Network
There are two new studies that the staff at the Autonomic Dysfunction
Center at Vanderbilt are recruiting subject with POTS for:
Modafinil and Cognitive Study,
PI: Amy Arnold, PhD - more info
Vagal Nerve Study,
PI:Andre' Diedrich, MD, PhD. - more info
The Autonomic Dysfunction Center
is part of the
Vanderbilt University Medical Center,
3228 Medical Center North,
Nashville, TN 37232.
The Center for Hypotension Department of Pediatrics is recruiting participants aged 14-29 years old for a study of postural vasovagal syncope (VVS, postural faint) and neuropathic postural tachycardia syndrome (POTS). Exact mechanisms of illness have remained elusive although our past work shows that with upright posture blood is excessively relocated from the central pool to the splanchnic vasculature in both VVS and neuropathic POTS. This occurs because blood vessel contraction (vasoconstriction) is impaired when upright. We hypothesize that impairment occurs because of excessive production of nitric oxide (NO) which reduces the ability of the nerves to produce vasoconstriction.
Further details of the research and representative consent forms can be found on our web-site, syncope.org
Or at our listing on Clinicaltrials.gov
If interested, please reply to:
Courtney Terilli, Research Coordinator
The Center for Hypotension
Department of Pediatrics
19 Bradhurst Avenue, Suite 1600 South
Hawthorne, New York 10532